Register of Charities - The Charity Commission RING20 RESEARCH AND SUPPORT UK CIO

Charity number: 1165651
Charity reporting is up to date (on time)

Activities - how the charity spends its money

We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy. We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.

Income and expenditure

Data for financial year ending 31 March 2023

Total income: £40,340
Total expenditure: £45,324

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.