BARDET - BIEDL SYNDROME UK

Charity number: 1027384
Removed charity

Charity overview

Activities - how the charity spends its money

ANNUAL FAMILY CONFERENCE, INCLUDING CHILDREN'S ACTIVITIES THROUGHOUT THE WEEKEND. PLUS PROFESSIONAL SPEAKERS, AND A CHANCE FOR FAMILIES AND THOSE WITH BBS TO GAIN INFORMATION AND SUPPORT THROUGHOUT THE WEEKEND AND THE YEAR. FUNDRAISING THROUGHTOUT THE YEAR. SUPPORTING FAMILIES AND THOSE WITH BBS WITH AN UP TO DATE WEB PAGE, PLUS INFORMATION LEAFLETS, NEWLETTERS, AND HELPLINE.

Income and expenditure

Data for financial year ending 31 December 2019

Total income: £101,078
Total expenditure: £104,976

Fundraising

This charity raises funds from the public but does not work with professional fundraisers or commercial participators.

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 19 October 1993: Standard registration
  • 23 December 2020: Removed (Amalgamated)
  • 23 December 2020: Funds transferred to 1181244 BARDET-BIEDL SYNDROME UK (BBS UK)
Organisation type:
Other
Other names:
  • BARDET-BIEDL SYNDROME UK (Working name)
  • LMBBS (Working name)
  • LAURENCE-MOON-BARDET-BIEDL SOCIETY (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Conflicting interests
  • Risk management
  • Safeguarding vulnerable beneficiaries
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Financial history

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Financial period end date

Income / Expenditure 31/12/2015 31/12/2016 31/12/2017 31/12/2018 31/12/2019
Total gross income £59.80k £63.94k £51.22k £97.95k £101.08k
Total expenditure £61.31k £30.81k £40.24k £63.30k £104.98k
Income from government contracts £0 £0 £0 N/A N/A
Income from government grants £0 £0 £0 N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2019 06 October 2020 On Time
Accounts and TAR 31 December 2019 06 October 2020 On Time
Annual return 31 December 2018 04 October 2019 On Time
Accounts and TAR 31 December 2018 04 October 2019 On Time
Annual return 31 December 2017 17 October 2018 On Time
Accounts and TAR 31 December 2017 17 October 2018 On Time
Annual return 31 December 2016 12 October 2017 On Time
Accounts and TAR 31 December 2016 12 October 2017 On Time

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 01/08/1993 AS AMENDED ON 24/04/2010 AS AMENDED ON 18/04/2015

Charitable objects

A) TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE WELFARE OF PERSONS SUFFERING FROM LAURENCE-MOON-BARDET-BIEDL SYNDROME AND THEIR FAMILIES. B) TO ADVANCE THE EDUCATION OF THE MEDICAL AND EDUCATIONAL PROFESSIONS AND THE GENERAL PUBLIC ON THE SUBJECT OF LAURENCE-MOON-BARDET-BIEDL SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED