TOFS

Charity number: 327735
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £149,765
Total expenditure: £171,700

People

8 Trustee(s)

46 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 03 March 1988: Standard registration
Organisation type:
Charitable company
Other names:
  • TRACHEO-OESOPHAGEAL FISTULA SUPPORT (Working name)
  • T O F S (Previous name)
Company number:
02202260 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

8 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
DUNCAN CARL JACKSON Chair
GRESLEY COLLIERY BRASS BAND
Received: On time
Andrew Ian Bailey Trustee 20 April 2023
None on record
Katrina Marie Tyler Trustee 31 March 2022
MAX'S TRUST
Received: On time
Clare Louise Johns Trustee 20 March 2021
None on record
Tamasine Swan Trustee 24 March 2018
None on record
Darrell Hill Trustee 18 April 2015
None on record
SUE LEWIS-JONES Trustee
None on record
Graham Slater Trustee
NEC UK
Received: On time

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £156.95k £120.04k £189.48k £151.78k £149.76k
Total expenditure £97.24k £92.68k £131.98k £183.85k £171.70k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 05 September 2024 On Time
Accounts and TAR 31 December 2023 05 September 2024 On Time Download Open in new window
Annual return 31 December 2022 12 September 2023 On Time
Accounts and TAR 31 December 2022 12 September 2023 On Time Download Open in new window
Annual return 31 December 2021 25 August 2022 On Time
Accounts and TAR 31 December 2021 25 August 2022 On Time Download Open in new window
Annual return 31 December 2020 12 July 2021 On Time
Accounts and TAR 31 December 2020 12 July 2021 On Time Download Open in new window
Annual return 31 December 2019 28 September 2020 On Time
Accounts and TAR 31 December 2019 28 September 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 3 DECEMBER 1987. AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 23 MAY 2016

Charitable objects

THE OBJECT FOR WHICH THE ASSOCIATION IS ESTABLISHED IS TO PROVIDE RELIEF TO IN NEED INDIVIDUALS (HEREINAFTER REFERRED TO AS “TOF INDIVIDUALS”) SUFFERING FROM TRACHEO OESOPHAGEAL FISTULA, OESOPHAGEAL ATRESIA AND OESOPHAGEAL AND RELATED DISORDERS INCLUDING THE VATER ASSOCIATION (HEREINAFTER COLLECTIVELY REFERRED TO AS "OESOPHAGEAL DISORDERS”) AS WELL AS THE PARENTS OR GUARDIANS OF SUCH TOF INDIVIDUALS BY: PROVIDING OR PAYING FOR ITEMS, SERVICES OR FACILITIES WHICH ARE CALCULATED TO ALLEVIATE THE SUFFERING OR ASSIST THE RECOVERY OF TOF INDIVIDUALS WHERE SUCH ITEMS, SERVICES OR FACILITIES ARE NOT READILY AVAILABLE TO THEM FROM OTHER SOURCES; PROMOTING CONTACT BETWEEN THE FAMILIES OF TOF INDIVIDUALS SUFFERING FROM OESOPHAGEAL DISORDERS WITH A VIEW TO SHARING MANAGEMENT PROBLEMS AND SOLUTIONS; AND COLLECTING AND DISSEMINATING INFORMATION CONCERNING OESOPHAGEAL DISORDERS IN THE CARE AND TREATMENT THEREOF

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
ST GEORGES CENTRE
91 VICTORIA ROAD
NETHERFIELD
NOTTINGHAM
NG4 2NN
Phone:
01159613092
Email:
No information available
Website:

www.tofs.org.uk Open in new window