Activities - how the charity spends its money
Supporting families with Xeroderma Pigmentosum or UV or light sensitivities, by exchange of information, and by giving of grants for UV protective equipment. We fund travel and accommodation expenses to attend the National XP Service at the Rare Disease Centre at St Thomas' Hospital, London.
We run an annual night time camp called the Owl Patrol.
Issue a Newsletter 2 times a year
Income and expenditure
Data for financial year ending
31 March 2020
Total income: £34,687
Total expenditure: £37,483
Employees with total benefits over £60,000
No employees have total benefits over £60k for this charity
This charity raises funds from the public but does not work with professional fundraisers or commercial participators.
This charity does not have any trading subsidiaries.
No trustees receive any remuneration, payments or benefits from the charity.