Charity number: 1126894
Charity reporting is up to date

Activities - how the charity spends its money

Connecting families and raising awareness amongst affected families and the general public. UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support. Attendance at Medical events and conferences. Initiation and co-sponsorship of International FA Gene Therapy Working Group.

Income and expenditure

Data for financial year ending 30 April 2019

Total income: £91,777
Total expenditure: £15,602
This charity raises funds from the public but does not work with professional fundraisers or commercial participators.
This charity does not have any trading subsidiaries.
Trustee payments
No trustees receive any remuneration, payments or benefits from the charity.