MYOTUBULAR TRUST

Charity number: 1137177
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy. The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £117,511
Total expenditure: £70,876

People

4 Trustee(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

One or more trustees receive payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 29 July 2010: Standard registration
  • 11 March 2020: Funds received from 1113809 MYOTUBULAR TRUST
Organisation type:
Charitable company
Other names:

No other names

Company number:
07260229 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
ANDREW LENNOX Chair
None on record
PATRICIA ALLEN Trustee 15 September 2011
None on record
ANNE LENNOX Trustee
None on record
James Rosling Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £219.61k £132.87k £144.77k £147.46k £117.51k
Total expenditure £152.75k £200.27k £112.63k £97.94k £70.88k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 03 October 2024 On time
Accounts and TAR 31 December 2023 03 October 2024 On time Download Open in new window
Annual return 31 December 2022 09 October 2023 On time
Accounts and TAR 31 December 2022 09 October 2023 On time Download Open in new window
Annual return 31 December 2021 21 September 2022 On time
Accounts and TAR 31 December 2021 21 September 2022 On time Download Open in new window
Annual return 31 December 2020 18 September 2021 On time
Accounts and TAR 31 December 2020 18 September 2021 On time Download Open in new window
Annual return 31 December 2019 29 September 2020 On time
Accounts and TAR 31 December 2019 29 September 2020 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 21 MAY 2010

Charitable objects

THE RELIEF OF DISABILITY AND THE EXTENSION OF LIFE FOR BABIES, CHILDREN AND ADULTS SUFFERING FROM MYOTUBULAR MYOPATHY, BY PROMOTING THE STUDY OF, AND RESEARCH INTO, THE TREATMENT AND CARE OF THE MUSCLE WEAKNESS CAUSED BY MYOTUBULAR MYOPATHY.

Area of benefit

The area the charity can operate in, as set out in its governing document.

UNDEFINED.

Contact information

Address:
15A BARNARD ROAD
LONDON
SW11 1QT
Phone:
020 8641 6427
Email:
contact@myotubulartrust.org
Website:

www.myotubulartrust.org Open in new window