Inflammatory Neuropathies UK

Charity Number: 1154843
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Support & advice for those affected by GBS, CIDP and associated inflammatory neuropathies. Furthering the education of medical and health care professionals and members of the public Funding research into the illnesses

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £303,906
Total expenditure: £216,979

People

8 Trustee(s)

15 Volunteer(s)

Employees with total benefits over £60,000

Number of employees
£60k to £70k 1

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Other Defined Groups
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Guernsey
  • Ireland
  • Isle Of Man
  • Jersey
  • Scotland

Governance

Registration history:
  • 03 December 2013: CIO registration
  • 11 November 2014: Funds received from 327314 THE GUILLAIN-BARRE SYNDROME SUPPORT GROUP
  • 25 April 2023: Funds received from 1062453 THE BUSENHART - MORGAN - EVANS FOUNDATION
Organisation type:
CIO
Other names:
  • GAIN (Working name)
  • GUILLAIN-BARR? & ASSOCIATED INFLAMMATORY NEUROPATHIES (Previous name)
  • GUILLAIN-BARRE & ASSOCIATED INFLAMMATORY NEUROPATHIES ("GAIN") (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

8 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Carol Hooper Chair 24 April 2021
None on record
Lora Barclay Trustee 21 November 2024
None on record
James Wilson Trustee 04 April 2024
None on record
Stephanie Parker Trustee 02 November 2023
None on record
Sean Austin Trustee 02 November 2023
None on record
Jatinder Paul Trustee 24 April 2021
None on record
Lee Raynor Trustee 29 October 2016
None on record
Jenny Louise Willison Trustee 29 October 2016
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £220.44k £172.79k £220.39k £450.58k £303.91k
Total expenditure £251.05k £188.67k £212.90k £224.22k £216.98k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 07 November 2024 On Time
Accounts and TAR 31 March 2024 07 November 2024 On Time Download Open in new window
Annual return 31 March 2023 26 October 2023 On Time
Accounts and TAR 31 March 2023 26 October 2023 On Time Download Open in new window
Annual return 31 March 2022 10 October 2022 On Time
Accounts and TAR 31 March 2022 10 October 2022 On Time Download Open in new window
Annual return 31 March 2021 08 November 2021 On Time
Accounts and TAR 31 March 2021 08 November 2021 On Time Download Open in new window
Annual return 31 March 2020 11 January 2021 On Time
Accounts and TAR 31 March 2020 11 January 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - ASSOCIATION REGISTERED ON AMENDED ON 17 MAY 2017 AMENDED ON 28 OCT 2017 as amended on 14 Oct 2019 as amended on 10 Apr 2025 as amended on 10 Apr 2025

Charitable objects

TO RELIEVE THE NEEDS OF PERSONS SUFFERING FROM GUILLAIN BARRE SYNDROME AND ASSOCIATED INFLAMMATORY NEUROPATHIES, THEIR FAMILIES AND CARERS IN PARTICULAR BUT NOT EXCLUSIVELY BY A)THE PROVISION OF INFORMATION, NON-MEDICAL ADVICE AND ASSISTANCE. B)THE PROMOTION OF RESEARCH INTO THE CAUSES, PREVENTION AND TREATMENT OF THE GUILLAIN BARRE SYNDROME AND ASSOCIATED INFLAMMATORY NEUROPATHIES. C)ADVANCING THE AWARENESS OF THE PUBLIC AND OF THE MEDICAL PROFESSION CONCERNING GUILLAIN BARRE SYNDROME AND ASSOCIATED INFLAMMATORY NEUROPATHIES, THEIR CAUSES, PREVENTION AND TREATMENT.

Contact information

Address:
GAIN
Glennys Sanders House
Pride Parkway
Enterprise Park
SLEAFORD
Lincolns
Phone:
01529469910
Email:
rich@gaincharity.org.uk
Website:

https://www.gaincharity.org.uk/ Open in new window