MYOTONIC DYSTROPHY FOUNDATION UK

Charity Number: 1161041
Removed charity

Charity overview

Activities - how the charity spends its money

The Myotonic Dystrophy Foundation UK funds basic and translational research focused on finding treatments and a cure for myotonic dystrophy, and, advocacy efforts to improve access to care and enhance the regulatory pathway.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £54,556
Total expenditure: £14,203

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • United States

Governance

Registration history:
  • 24 March 2015: Standard registration
  • 28 April 2025: Removed (Funds transferred (gi))
Organisation type:
Charitable company
Other names:
  • Myotonic: My Cause. My Cure. (Working name)
  • THE WYCK FOUNDATION (Previous name)
  • WYCK FOUNDATION (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Conflicting interests
  • Risk management
Land and property:
This charity does not own and/or lease land or property

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £72.69k £33.15k £85.88k £7.49k £54.56k
Total expenditure £647.62k £193.43k £72.90k £2.20k £14.20k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 24 September 2024 On Time
Accounts and TAR 31 December 2023 28 October 2024 On Time
Annual return 31 December 2022 19 December 2023 49 days late
Accounts and TAR 31 December 2022 Not Required
Annual return 31 December 2021 02 August 2022 On Time
Accounts and TAR 31 December 2021 02 August 2022 On Time
Annual return 31 December 2020 29 October 2021 On Time
Accounts and TAR 31 December 2020 29 October 2021 On Time
Annual return 31 December 2019 29 October 2020 On Time
Accounts and TAR 31 December 2019 29 October 2020 On Time
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Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES INCORPORATED 28/08/2014 AS AMENDED BY SPECIAL RESOLUTION(S) DATED 13/12/2014 AS REGISTERED AT COMPANIES HOUSE ON 02/01/2015 AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 10/03/2015 as amended on 21 Aug 2019

Charitable objects

THE OBJECTS OF THE CHARITY ARE: THE PRESERVATION OF HEALTH AND THE RELIEF OF SICKNESS AND NEED FOR THE PUBLIC BENEFIT BY: A) SUPPORTING, COMMISSIONING OR UNDERTAKING RESEARCH INTO THE PREVENTION, TREATMENT AND CURE OF MYOTONIC DYSTROPHY CONDITIONS AND TO PUBLISH OR DISSEMINATE THE USEFUL RESULTS OF THAT RESEARCH FOR PUBLIC BENEFIT; AND B) SUPPORTING OTHER INITIATIVES THAT PROVIDE OR SUPPORT THE CARE AND RELIEF OF SUFFERERS OF MYOTONIC DYSTROPHY CONDITIONS AND THEIR FAMILIES AS APPROPRIATE.