RING20 RESEARCH AND SUPPORT UK CIO

Charity number: 1165651
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy. We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £50,152
Total expenditure: £23,341

People

6 Trustee(s)

10 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

One or more trustees receive payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 19 February 2016: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints policy and procedures
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Lydia Elena Hirst Chair 01 November 2020
None on record
Dr Sze-Man Clara Tang Trustee 24 November 2024
None on record
Dr Antonio Gil-Nagel Trustee 17 April 2024
None on record
Tim Buckinx Trustee 27 November 2022
None on record
Dale Ward Trustee 03 December 2021
None on record
Kim Parks Trustee 01 October 2020
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £24.73k £43.84k £40.48k £40.34k £50.15k
Total expenditure £21.50k £12.78k £32.45k £45.32k £23.34k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 28 October 2024 On Time
Accounts and TAR 31 March 2024 28 October 2024 On Time Download Open in new window
Annual return 31 March 2023 18 December 2023 On Time
Accounts and TAR 31 March 2023 18 December 2023 On Time Download Open in new window
Annual return 31 March 2022 09 November 2022 On Time
Accounts and TAR 31 March 2022 09 November 2022 On Time Download Open in new window
Annual return 31 March 2021 08 December 2021 On Time
Accounts and TAR 31 March 2021 08 December 2021 On Time Download Open in new window
Annual return 31 March 2020 11 January 2021 On Time
Accounts and TAR 31 March 2020 11 January 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - Association Registered 19 Feb 2016

Charitable objects

“THE OBJECTS OF THE CIO ARE: THE PRESERVATION AND PROTECTION OF HEALTH AND THE RELIEF OF NEED IN PARTICULAR BY: A) PROVIDING ADVICE, SUPPORT AND INFORMATION TO RING CHROMOSOME 20 SYNDROME (R)20 PATIENTS AND THEIR FAMILIES; B) PROVIDING OR ASSISTING IN THE PROVISION OF INFORMATION TO THE PUBLIC ABOUT THE CONDITION (R)20; C) SUPPORTING MEDICAL PROFESSIONALS IN THEIR UNDERSTANDING OF RING CHROMOSOME 20 SYNDROME, (R)20 ITS DIAGNOSIS, PROGNOSIS AND TREATMENT; D) SUPPORTING RESEARCH INTO THE CONDITION, (R)20, ITS CAUSES AND THE MEANS TO IMPROVE THE OUTCOMES FOR THOSE SUFFERING WITH THE CONDITION AND PROMOTING THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH.

Contact information

Address:
LYTCHETT HOUSE
UNIT 13 FREELAND PARK
WAREHAM ROAD
POOLE
DORSET
BH16 6FA
Phone:
+44 (0)7385 292797
Email:
ring20@ring20researchsupport.co.uk
Website:

http://www.ring20researchsupport.co.uk/ Open in new window