Register of Charities - The Charity Commission BARDET-BIEDL SYNDROME UK (BBS UK)

Charity number: 1181244
Charity reporting is up to date (on time)

Activities - how the charity spends its money

BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.

Income and expenditure

Data for financial year ending 31 December 2020

Total income: £53,704
Total expenditure: £55,174


This charity raises funds from the public but does not work with professional fundraisers or commercial participators.


One or more trustees are also directors of the subsidiaries

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.