BARTH SYNDROME UK

Charity Number: 1181830
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care. We fund research into treatments and a cure.

Income and expenditure

Data for financial year ending 31 December 2024

Total income: £25,067
Total expenditure: £33,206

People

7 Trustee(s)

1 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • Other Defined Groups
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Scotland
  • United States

Governance

Registration history:
  • 31 January 2019: CIO registration
  • 11 January 2020: Funds received from 1100835 BARTH SYNDROME TRUST
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
RALPH STEVEN EASTERBROOK Chair 14 August 2022
None on record
Joanna Katarzyna Kozminska Trustee 18 September 2024
None on record
Paul Laurence Ford Trustee 17 January 2024
None on record
Suzanne Michelle Green Trustee 10 August 2023
None on record
Kelsey Leigh Doran Trustee 19 October 2022
None on record
Cheryl Jayne Parish Trustee 14 August 2022
None on record
Geoffrey Malcolm Parish Trustee 31 January 2019
None on record

Financial history

" role="img"> Text alternative for this canvas graphic is in the data table below.

Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 31/12/2023 31/12/2024
Total gross income £33.94k £31.01k £11.85k £79.37k £25.07k
Total expenditure £27.09k £44.84k £46.14k £60.57k £33.21k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2024 09 April 2025 On Time
Accounts and TAR 31 December 2024 09 April 2025 On Time Download Open in new window
Annual return 31 December 2023 18 March 2024 On Time
Accounts and TAR 31 December 2023 18 March 2024 On Time Download Open in new window
Annual return 31 December 2022 02 March 2023 On Time
Accounts and TAR 31 December 2022 02 March 2023 On Time Download Open in new window
Annual return 31 December 2021 08 March 2022 On Time
Accounts and TAR 31 December 2021 08 March 2022 On Time Download Open in new window
Annual return 31 December 2020 19 March 2021 On Time
Accounts and TAR 31 December 2020 19 March 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 31 Jan 2019

Charitable objects

THE RELIEF OF INDIVIDUALS WITH, AND CARRIERS OF, BARTH SYNDROME AND THEIR FAMILIES, WITHIN THE UNITED KINGDOM AND ELSEWHERE IN THE WORLD IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING ACCESS TO INFORMATION, ADVICE AND SUPPORT IN RELATION TO THE CONDITION TO THE PUBLIC AND, IN PARTICULAR, DIAGNOSED INDIVIDUALS AND THEIR EXTENDED FAMILIES AND THOSE IN THE EDUCATIONAL, SCIENTIFIC, MEDICAL AND ALLIED HEALTH CARE PROFESSIONS. B) THE PROMOTION AND FUNDING OF RESEARCH INTO THE CAUSES AND EFFECTS OF THE CONDITION AND THE DISSEMINATION OF THE USEFUL RESULTS OF THE SAME FOR THE BENEFIT OF THE PUBLIC.

Area of benefit

The area the charity can operate in, as set out in its governing document.

WITHIN THE UNITED KINGDOM AND ELSEWHERE IN THE WORLD

Contact information

Address:
1 THE VIKINGS
ROMSEY
SO51 5RG
Phone:
01794518785
Email:
info@barthsyndrome.org.uk
Website:

www.barthsyndrome.org.uk Open in new window