THE SCHINZEL-GIEDION SYNDROME FOUNDATION
Charity number: 1186327
Charity reporting is up to date (on time)
Charity overview
Activities - how the charity spends its money
Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.
Income and expenditure
Data for financial year ending 31 March 2024
Total income: £85,501
Total expenditure: £64,835
People
3 Trustee(s)
Employees with total benefits over £60,000
No information availableFundraising
No information available
Trading
This charity does not have any trading subsidiaries.
Trustee payments
No trustees receive any remuneration, payments or benefits from the charity.
What, who, how, where
Main way of carrying out purposes is grant making
What the charity does:
- The Advancement Of Health Or Saving Of Lives
Who the charity helps:
- Children/young People
- People With Disabilities
How the charity helps:
- Makes Grants To Individuals
- Makes Grants To Organisations
- Provides Advocacy/advice/information
Where the charity operates:
- Throughout England And Wales
- Canada
- Denmark
- United States
Governance
Registration history:
- 13 November 2019: CIO registration
Organisation type:
CIO
Other names:
No other names
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
- Complaints policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Serious incident reporting policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
3 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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| Dr Nuala Summerfield | Chair | 13 November 2019 |
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| Aleksandra Blagunovski | Trustee | 24 March 2024 |
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| Dana Bradley | Trustee | 24 April 2022 |
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Financial history
Financial period end date
| Income / Expenditure | 31/03/2021 | 31/03/2022 | 31/03/2023 | 31/03/2024 | ||
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Total gross income | £29.26k | £20.43k | £59.30k | £85.50k | |
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Total expenditure | £1.79k | £8.36k | £4.96k | £64.83k | |
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Income from government contracts | N/A | N/A | N/A | N/A | |
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Income from government grants | N/A | N/A | N/A | N/A |
Accounts and annual returns
This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
| Title | Reporting year | Date received | Received | Download |
|---|---|---|---|---|
| Annual return | 31 March 2024 | 30 January 2025 | On Time | |
| Accounts and TAR | 31 March 2024 | 30 January 2025 | On Time | Download Open in new window |
| Annual return | 31 March 2023 | 08 March 2024 | 37 days late | |
| Accounts and TAR | 31 March 2023 | 08 March 2024 | 37 days late | Download Open in new window |
| Annual return | 31 March 2022 | 30 January 2023 | On Time | |
| Accounts and TAR | 31 March 2022 | 30 January 2023 | On Time | Download Open in new window |
| Annual return | 31 March 2021 | 18 January 2022 | On Time | |
| Accounts and TAR | 31 March 2021 | 18 January 2022 | On Time | Download Open in new window |