PRIMARY CILIARY DYSKINESIA SUPPORT UK

Charity number: 1207340
Recently registered

Charity overview

This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 06 March 2024: CIO registration
Organisation type:
CIO
Other names:
  • PCD SUPPORT UK (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
No policies declared
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Katie Dexter Chair 01 March 2024
PRIMARY CILIARY DYSKINESIA SUPPORT UK
Received: On time
Natasha Mary Bellwood Trustee 01 March 2024
None on record
MICHELLE FORSYTHE Trustee 01 March 2024
None on record
Katie Vance Trustee 01 March 2024
None on record
Gerry Paul Rowe-Ham Trustee 01 March 2024
None on record
Myra Anita Tipping Trustee 01 March 2024
None on record
Abdullah Ihsan Trustee 01 March 2024
PRIMARY CILIARY DYSKINESIA SUPPORT UK
Received: On time

Financial history

This charity was registered recently. It does not have to provide information until 10 months after its first financial period.

Accounts and annual returns

This is a newly registered charity - accounts and annual return not required yet. The charity does not need to update its information until 10 months after its first financial period ends.

Governing document

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 06 Mar 2024

Charitable objects

FOR THE PUBLIC BENEFIT TO PRESERVE AND PROTECT THE HEALTH AND TO RELIEVE THE NEEDS OF PATIENTS, WHO HAVE OR ARE SUSPECTED OF HAVING PRIMARY CILIARY DYSKINESIA (PCD) AND THEIR CARERS IN THE UNITED KINGDOM [INCLUDING SCOTLAND AND NORTHERN IRELAND] IN PARTICULAR BUT NOT EXCLUSIVELY BY: - RAISING AWARENESS OF PCD BY PROVIDING INFORMATION TO THE MEDICAL COMMUNITY AND THE GENERAL PUBLIC. - ENCOURAGING THE ADVANCEMENT OF MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF PCD, PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED

Contact information

Address:
3 Laggan Road
MAIDENHEAD
Berkshire
SL6 7JY
Phone:
0000000000
Email:
chair@pcdsupport.org.uk
Website:

https://pcdsupport.org.uk/ Open in new window