EPILEPSY RESEARCH INSTITUTE UK
Charity overview
Activities - how the charity spends its money
The Epilepsy Research Institute UK is currently trading as Epilepsy Research UK. Epilepsy Research UK was formed by the merger of the Epilepsy Research Foundation and the Fund for Epilepsy in April 2007. It is the only national charity exclusively dedicated to driving and enabling life changing, life saving research.
Income and expenditure
Data for financial year ending 31 March 2024
Total income:
£3,595,109
| Donations and legacies | £1.89m | |
| Charitable activities | £1.48m | |
| Other trading activities | £3.61k | |
| Investments | £226.50k | |
| Other | £0 |
Total expenditure:
£3,091,263
| Raising funds | £177.66k | |
| Charitable activities | £2.91m | |
| Other | £0 |
£278,842 investments gains (losses)
Total income includes £1,478,851 from 1 government grant(s)
Charitable expenditure
Charitable expenditure with investment gains
Charitable expenditure
Some charities generate all, or a substantial part, of their income from investments which may have been donated to the charity as endowment or set aside by the charity from its own resources in the past. Such investments usually take the form of stocks and shares but may include other assets, such as property, that are capable of generating income and/or capital growth.
In managing their spending and investments charities need to strike a balance between the needs of future and current beneficiaries. They also need to take account of spending commitments that may stretch over a number of future years. To do this, charities will normally adopt an investment strategy designed to generate both income and capital growth. To maximise returns trustees may commit to investment strategies for several years.
Investments can experience large swings in value so trustees may, in a particular year, decide to realise and spend part of their charity’s capital or to invest part of its income.
By clicking the investment gains checkbox the charitable spending bar is adjusted to take account of capital growth as well as income. This shows the balance the charity is striking, between spending on current beneficiaries and retaining resources for future beneficiaries.
| Raising funds and other expenditure | £177.66k | |
| Charitable expenditure | £2.91m | |
| Retained for future use | £503.85k |
People
10 Employee(s)
16 Trustee(s)
42 Volunteer(s)
Employees with total benefits over £60,000
| Number of employees | |
|---|---|
| £70k to £80k | 1 |
| £90k to £100k | 1 |
Fundraising
Trading
Trustee payments
What, who, how, where
- The Advancement Of Health Or Saving Of Lives
- Children/young People
- Elderly/old People
- People With Disabilities
- The General Public/mankind
- Makes Grants To Organisations
- Sponsors Or Undertakes Research
- Throughout England And Wales
Governance
- 30 October 2003: Standard registration
- EPILEPSY RESEARCH FOUNDATION (Previous name)
- EPILEPSY RESEARCH UK (Previous name)
- FUND FOR EPILEPSY (Previous name)
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investment
- Paying staff
- Risk management
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Volunteer management
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
16 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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| Simon Lodge | Trustee | 12 December 2024 |
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| Lesslie Anne Young | Trustee | 14 December 2023 |
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| Juliet Kate Solomon | Trustee | 14 December 2023 |
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| Rebekah Smith | Trustee | 14 December 2023 |
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| Mark Devlin | Trustee | 14 December 2023 |
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| Dr Abbie Elizabeth Fearon-Yorke | Trustee | 13 September 2023 |
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| Dr Sukhvir Wright | Trustee | 22 March 2023 |
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| Professor Anthony Marson | Trustee | 22 March 2023 |
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| Professor Martin John Elliott | Trustee | 30 June 2022 |
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| Professor Nicholas John Lench | Trustee | 15 September 2021 |
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| Professor Michael Alan Cousin | Trustee | 17 June 2020 |
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| Dr Rhys Huw Thomas | Trustee | 12 December 2018 |
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| Judith Mary Spencer-Gregson | Trustee | 17 September 2014 |
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| Professor Mark Richardson | Trustee | 18 September 2013 |
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| Professor Matthew Walker | Trustee | 19 October 2011 |
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| Barrie Akin | Trustee |
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Financial history
Financial period end date
| Income / Expenditure | 31/03/2020 | 31/03/2021 | 31/03/2022 | 31/03/2023 | 31/03/2024 | ||
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Total gross income | £2.26m | £1.23m | £2.39m | £3.61m | £3.60m | |
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Total expenditure | £2.07m | £2.00m | £2.27m | £2.66m | £3.09m | |
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Income from government contracts | N/A | N/A | N/A | N/A | N/A | |
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Income from government grants | N/A | N/A | £485.00k | £1.45m | £1.48m | |
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Income - Donations and legacies | £2.09m | £1.11m | £2.74m | £1.97m | £1.89m | |
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Income - Other trading activities | £28.60k | £16.50k | £25.59k | £18.19k | £3.61k | |
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Income - Charitable activities | £87.70k | £0 | £133.59k | £1.45m | £1.48m | |
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Income - Endowments | £0 | £0 | £0 | £0 | £0 | |
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Income - Investment | £48.75k | £64.74k | £86.12k | £168.27k | £226.50k | |
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Income - Other | £0 | £32.64k | £0 | £0 | £0 | |
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Income - Legacies | £1.31m | £423.74k | £1.52m | £928.73k | £997.33k | |
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Expenditure - Charitable activities | £1.87m | £1.84m | £2.09m | £2.49m | £2.91m | |
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Expenditure - Raising funds | £198.46k | £158.94k | £174.65k | £173.30k | £177.66k | |
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Expenditure - Governance | £23.83k | £0 | £27.98k | £104.03k | £79.80k | |
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Expenditure - Grants institution | £1.34m | £1.32m | £1.57m | £1.71m | £2.03m | |
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Expenditure - Investment management | £10.12k | £18.92k | £18.37k | £39.20k | £25.62k | |
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Expenditure - Other | £0 | £0 | £0 | £0 | £0 |
Assets and liabilities
Definitions for assets and liabilities
These are assets, other than investments, which are held for more than 12 months and used to run and administer the charity such as buildings, offices, exhibits and fixtures and fittings.
Long term InvestmentsInvestments are assets held by the charity with the sole aim of generating income which will be used for their charitable purposes such as deposit accounts, shares, rental property and unit trusts.
Investment assets are re-valued every year and included in the balance sheet at their current market value.
Long term investments are held for more than 12 months.
These are assets held generally for less than 12 months such as cash and bank balances, debtors, investments to be sold within the coming year and trading stock.
Defined benefit pension scheme asset or liabilityThis is a surplus or deficit in any defined benefit pension scheme operated and represents a potential long-term asset or liability.
Total liabilitiesThese are all the amounts owed by the charity at the balance sheet date to third parties such as bills due but not yet paid, bank overdrafts and loans and mortgages.
| Asset / Liability | 31/03/2020 | 31/03/2021 | 31/03/2022 | 31/03/2023 | 31/03/2024 | ||
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Own use assets | £0 | £0 | £0 | £0 | £0 | |
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Long-term investments | £2.02m | £2.31m | £3.90m | £3.74m | £7.55m | |
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Other assets | £4.09m | £4.01m | £3.77m | £5.43m | £3.04m | |
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Defined benefit pension scheme asset or liability | £0 | £0 | £0 | £0 | £0 | |
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Total liabilities | £3.62m | £4.35m | £4.95m | £5.77m | £6.42m |
Accounts and annual returns
| Title | Reporting year | Date received | Received | Download |
|---|---|---|---|---|
| Annual return | 31 March 2024 | 06 November 2024 | On Time | |
| Accounts and TAR | 31 March 2024 | 06 November 2024 | On Time | Download Open in new window |
| Annual return | 31 March 2023 | 02 December 2024 | 306 days late | |
| Accounts and TAR | 31 March 2023 | 02 December 2024 | 306 days late | Download Open in new window |
| Annual return | 31 March 2022 | 26 September 2022 | On Time | |
| Accounts and TAR | 31 March 2022 | 26 September 2022 | On Time | Download Open in new window |
| Annual return | 31 March 2021 | 17 November 2021 | On Time | |
| Accounts and TAR | 31 March 2021 | 17 November 2021 | On Time | Download Open in new window |
| Annual return | 31 March 2020 | 11 January 2021 | On Time | |
| Accounts and TAR | 31 March 2020 | 11 January 2021 | On Time | Download Open in new window |