Dogfen lywodraethu BATTEN DISEASE FAMILY ASSOCIATION
Rhif yr elusen: 1084908
Mae adrodd am yr elusen yn gyfredol (yn brydlon)
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu'r elusen.
CONSTITUTION ADOPTED 13/04/2000
AS AMENDED ON 05/10/2008
AS AMENDED ON 15/06/2010
AS AMENDED ON 19 NOV 2016
Gwrthrychau elusennol
A) PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE WELFARE OF PERSONS AFFECTED BY ALL TYPES OF NEURONAL CERIOD LIPOFUSCINOSIS (NCL) COMMONLY KNOWN AS BATTEN DISEASE.
B) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF BATTEN DISEASE AND ITS IMPLICATIONS FOR THE FAMILY.
C) TO PROMOTE RESEARCH INTO THE MANAGEMENT OF BATTEN DISEASE AND TO PUBLISH THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO BATTEN DISEASE.
Maes buddion
Y maes y gall yr elusen weithredu ynddo, fel y nodir yn ei dogfen lywodraethu.
