Dogfen lywodraethu BARTH SYNDROME TRUST

Rhif yr elusen: 1100835
Elusen a dynnwyd

Dogfen lywodraethu

Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y’i sefydlwyd.
Nid dyma destun llawn dogfen lywodraethu’r elusen.

DECLARATION OF TRUST DATED 6 AUGUST 2003 AS AMENDED BY SUPPLEMENTAL DEED DATED 11 NOVEMBER 2003.

Gwrthrychau elusennol

THE RELIEF OF INDIVIDUALS AND THE FAMILIES OF INDIVIDUALS SUFFERING FROM BARTH SYNDROME WITHIN THE UNITED KINGDOM AND ELSEWHERE IN THE WORLD PARTICULARLY BY: A) THE PROVISION OF ACCESS TO THE LATEST INFORMATION IN RELATION TO THE CONDITION TO THE PUBLIC AND, IN PARTICULAR, THE FAMILIES OF SUFFERERS AND THOSE IN THE MEDICAL AND HEALTH CARE PROFESSIONS. B) THE PROMOTION AND FUNDING OF RESEARCH INTO THE CAUSES AND EFFECTS OF THE CONDITION AND THE DISSEMINATION OF THE USEFUL RESULTS OF THE SAME FOR THE BENEFIT OF THE PUBLIC.

Maes buddion

Y maes y gall yr elusen weithredu ynddo, fel y nodir yn ei dogfen lywodraethu.

UNITED KINGDOM AND ELSEWHERE IN THE WORLD


Argraffu manylion yr elusen