Dogfen lywodraethu DRAVET SYNDROME UK
Dogfen lywodraethu
Nid dyma destun llawn dogfen lywodraethu'r elusen.
TRUST DEED DATED 31 JANUARY 2009 AS AMENDED BY SUPPLEMENTAL DEED DATED 6 NOVEMBER 2010
Gwrthrychau elusennol
1) TO FUND RESEARCH INTO DRAVET SYNDROME AND OTHER RELATED GENETIC SODIUM CHANNEL EPILEPSY'S TO BENEFIT SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES. 2) TO ADVANCE THE EDUCATION OF THE MEDICAL COMMUNITY IN THE SUBJECT OF DRAVET SYNDROME, THEREFORE PROMPTING ACCURATE AND EARLY DIAGNOSIS AND BENEFITING SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES. 3) TO PROMOTE THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE.
Maes buddion
UNDEFINED. IN PRACTICE, NATIONAL
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