Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu'r elusen.
CONSTITUTION ADOPTED 16/02/2012 as amended on 24 Sep 2017
Gwrthrychau elusennol
(1) TO RELIEVE THE NEEDS OF INDIVIDUALS SUFFERING FROM THE GENETIC CONDITION ALPHA-1 ANTITRYPSIN DEFICIENCY (AATD), THEIR FAMILIES, CARERS AND FRIENDS, IN PARTICULAR, BUT NOT EXCLUSIVELY BY:
A) PROVIDING ADVICE, SUPPORT AND EQUIPMENT WITH A VIEW TO IMPROVE THE QUALITY OF LIFE OF THOSE SUFFERING WITH AATD, THEIR FAMILIES, CARERS AND FRIENDS;
B) ADVANCING AWARENESS AND KNOWLEDGE OF AATD, IN PARTICULAR AMONG AFFECTED PATIENTS AND MEDICAL PROFESSIONS AND HEALTHCARE PROVIDER ORGANISATIONS;
C) FOSTERING IMPROVEMENTS IN ACCESS AND EQUALITY OF ACCESS TO CLINICAL EXPERTISE AND OPTIMAL DISEASE MANAGEMENT AND TREATMENTS FOR AATD;
D) SUPPORTING INITIATIVES AIMED AT DEVELOPMENT, INTRODUCTION AND WIDESPREAD ADOPTION OF NOVEL THERAPIES FOR AATD, INCLUDING RESEARCH.
E) WORKING COLLABORATIVELY WITH OUR MEMBERS AND RELEVANT EXTERNAL INDIVIDUALS, GROUPS OF INDIVIDUALS, ORGANISATIONS AND INSTITUTIONS IN ORDER TO ACHIEVE A) - D).
Maes buddion
Y maes y gall yr elusen weithredu ynddo, fel y nodir yn ei dogfen lywodraethu.
