Dogfen lywodraethu CDKL5 UK

Rhif yr elusen: 1149099
Elusen a dynnwyd

Dogfen lywodraethu

Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y’i sefydlwyd.
Nid dyma destun llawn dogfen lywodraethu’r elusen.

CONSTITUTION ADOPTED 01 AUG 2012 AS AMENDED ON 20/09/2012

Gwrthrychau elusennol

TO PROMOTE RELIEF, CARE AND SERVICES TO PROMOTE HEALTH FOR PERSONS SUFFERING FROM AND AFFECTED BY CDKL5, IN PARTICULAR BY: 1. FUNDING RESEARCH WORLDWIDE FOR TREATING THE SYMPTOMS, INCLUDING EPILEPSY AND RESEARCH INTO THE GENETIC CAUSE OF CDKL5 AND DISSEMINATING OR PUBLISHING THE USEFUL RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE PUBLIC. 2. SUPPORTING PARTICIPATION INTO CLINICAL TRIALS RELEVANT TO TREATING THE SYMPTOMS OR DEVELOPMENT A CURE FOR CDKL5, OR PARTICIPATION IN CLINICAL FOR SIMILAR RETT-LIKE DISORDERS AND RETT SYNDROME. 3. RAISING PUBLIC AWARENESS OF CDKL5 AND PROMOTING A GREATER UNDERSTANDING OF THE CONDITION WITHIN THE GENERAL PUBLIC AND THE MEDICAL AND SOCIAL PROFESSIONS.


Argraffu manylion yr elusen