Dogfen lywodraethu ASSOCIATION FOR MULTIPLE ENDOCRINE NEOPLASIA DISORDERS
Rhif yr elusen: 1153890
Mae'r adroddiad gan yr elusen wedi'i ddiweddaru (ar amser)
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu'r elusen.
CIO - ASSOCIATION REGISTERED 20 SEP 2013
AMENDED ON 09 MAY 2016
Gwrthrychau elusennol
TO RELIEVE PEOPLE WHO SUFFER FROM MULTIPLE ENDOCRINE NEOPLASIA (M.E.N.) OF ALL TYPES, THEIR FAMILIES, FRIENDS AND CARERS BY ALL OR ANY OF THE FOLLOWING MEANS:
(1) ACTING AS A RELIABLE AND ACCURATE SOURCE OF INFORMATION FOR THE PUBLIC CONCERNING M.E.N. AND ITS ASSOCIATED SPORADIC GROWTHS, BY:
(A) WORKING WITHIN THE APPROVAL OF MEMBERS OF THE MEDICAL PROFESSION WHO ARE DIRECTLY INVOLVED IN THE TREATMENT OF AND RESEARCH INTO M.E.N.
(B) COLLECTING, COLLATING AND DISTRIBUTING APPROPRIATE AND APPROVED INFORMATION.
(C) PRODUCING THE CHARITY’S OWN PATIENT-AIMED APPROVED INFORMATION.
(2) PROMOTING A WIDER KNOWLEDGE OF THE ILLNESS AMONG THE MEDICAL PROFESSION TO ASSIST IN EARLY AND ACCURATE DIAGNOSIS.
(3) PROVIDING RELIABLE AND ACCURATE INFORMATION WITH REGARD TO GENETIC TESTING FOR PEOPLE WITH M.E.N. AND ITS ASSOCIATED FAMILIAL GROWTHS, THEIR FAMILIES, FRIENDS AND CARERS.
(4) PROVIDING EMOTIONAL SUPPORT TO PATIENTS, THEIR FAMILIES, FRIENDS AND CARERS IN THE FORM OF CONTACT WITH OTHERS IN SIMILAR SITUATIONS IN ORDER TO FACILITATE THE SHARING OF EXPERIENCES.
