Dogfen lywodraethu PHELAN-MCDERMID SYNDROME FOUNDATION UK
Rhif yr elusen: 1157423
Mae'r adroddiad gan yr elusen wedi'i ddiweddaru (ar amser)
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu'r elusen.
CIO - Foundation Registered 10 Jun 2014 as amended on 10 Jan 2024
Gwrthrychau elusennol
THE OBJECT OF THE CIO IS:
THE RELIEF OF NEEDS OF PEOPLE WHO HAVE BEEN DIAGNOSED WITH PHELAN-MCDERMID SYNDROME (CHROMOSOME 22Q13.3 DELETION) AND THEIR FAMILIES, IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING SUPPORT, FAMILY DAYS, INFORMATION, FINANCIAL GRANTS FOR DIFFERENT THERAPIES FOR THE PERSON WITH THE SYNDROME AND RESEARCH ENDORSED BY THE INTERNATIONAL PHELAN-MCDERMID SYNDROME FOUNDATION.
