Dogfen lywodraethu Action FCS
Dogfen lywodraethu
Nid dyma destun llawn dogfen lywodraethu'r elusen.
CIO - FOUNDATION REGISTERED 04 MAR 2016 AMENDED ON 17 OCT 2017 as amended on 03 Sep 2020
Gwrthrychau elusennol
THE OBJECTS OF THE CIO ARE TO RELIEVE SICKNESS AND PRESERVE AND PROTECT GOOD HEALTH OF PERSONS SUFFERING FROM FAMILIAL LIPOPROTEIN LIPASE DEFICIENCY (LPLD) AND RELATED CONDITIONS BY: 1. RAISING AWARENESS OF LPLD AND RELATED CONDITIONS; 2. EDUCATING PATIENTS, MEDICAL PERSONNEL AND THE PUBLIC IN GENERAL ABOUT LPLD; 3. SUPPORTING PEOPLE WITH LPLD AND THOSE AFFECTED BY IT TO LIVE A FULL, HEALTHY AND INTEGRATED LIFE; 4. ADVOCATING FOR ACCESS TO EXCELLENT CARE AND NEW MEDICINES FOR ALL PATIENTS WITH LPLD. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008.
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