Gwrthrychau elusennol
TO RELIEVE THE NEEDS OF CHILDREN AND YOUNG PEOPLE DIAGNOSED WITH PITT HOPKINS SYNDROME,THEIR FAMILIES AND CARERS BY:
1.INCREASING THE PROFILE OF PITT-HOPKINS SYNDROME FOR PUBLIC BENEFIT BY RAISING AWARENESS OF PITT-HOPKINS SYNDROME.
2.SUPPORTING FAMILIES HAVING A DIAGNOSIS OF PITT-HOPKINS SYNDROME BY PROVIDING INFORMATION AND FUNDING TO FACILITATE OPPORTUNITIES AND MEANS TO COMMUNICATE WITH EACH OTHER AND TO EXCHANGE EXPERIENCES AND ADVICE.
3.PROMOTING UNDERSTANDING OF PITT-HOPKINS SYNDROME BY PROVIDING INFORMATION TO MEDICAL AND SOCIAL PROFESSIONALS.
4.SUPPORTING RESEARCH INTO PITT-HOPKINS SYNDROME, IN PARTICULAR NATURAL HISTORY STUDIES AND BREATHING ANOMALIES AND THE DISSEMINATION OF THE USEFUL RESULTS OF THAT RESEARCH.
