Gwrthrychau elusennol
THE RELIEF OF INDIVIDUALS WITH, AND CARRIERS OF, BARTH SYNDROME AND THEIR FAMILIES, WITHIN THE UNITED KINGDOM AND ELSEWHERE IN THE WORLD IN PARTICULAR BUT NOT EXCLUSIVELY BY:
A) PROVIDING ACCESS TO INFORMATION, ADVICE AND SUPPORT IN RELATION TO THE CONDITION TO THE PUBLIC AND, IN PARTICULAR, DIAGNOSED INDIVIDUALS AND THEIR EXTENDED FAMILIES AND THOSE IN THE EDUCATIONAL, SCIENTIFIC, MEDICAL AND ALLIED HEALTH CARE PROFESSIONS.
B) THE PROMOTION AND FUNDING OF RESEARCH INTO THE CAUSES AND EFFECTS OF THE CONDITION AND THE DISSEMINATION OF THE USEFUL RESULTS OF THE SAME FOR THE BENEFIT OF THE PUBLIC.
