Mae'r adroddiad gan yr elusen wedi'i ddiweddaru (ar amser)
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu'r elusen.
CIO - ASSOCIATION Registered 14 Dec 2018
Gwrthrychau elusennol
TO RELIEVE SICKNESS AND TO PRESERVE AND PROTECT GOOD HEALTH OF UK ANAPLASTIC LYMPHOMA KINASE (ALK) POSITIVE LUNG CANCER PATIENTS BY:-
A. PROVIDING AN INFORMATION RESOURCE, IN PARTICULAR ACCESS TO INFORMATION ABOUT LATEST DEVELOPMENTS AND CLINICAL TRIALS;
B. IDENTIFYING AND LOCATING UK ALK PATIENTS AND OFFERING SUPPORT AND GUIDANCE ON THE LOCATION OF UK ALK SPECIALISTS AND SERVICES;
C. LIAISING WITH AND INFLUENCING DECISION MAKERS, E.G. NICE, NHS, DVLA;
D. RAISING AWARENESS OF ALK LUNG CANCER, PARTICULARLY AMONGST THE MEDICAL PROFESSION SO AS TO PROMOTE THE BEST TREATMENT FOR PATIENTS;
E. LIAISING WITH RELEVANT ORGANISATIONS, IN PARTICULAR ROY CASTLE LUNG CANCER FOUNDATION AND THE PHARMACEUTICAL INDUSTRY;
F. RAISING FUNDS FOR THE ABOVE PURPOSES.
