Mae'r adroddiad gan yr elusen wedi'i ddiweddaru (ar amser)
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu'r elusen.
TRUST DEED DATED 14 JAN 2020
Gwrthrychau elusennol
1) THE RELIEF OF SICKNESS AND PRESERVATION OF HEALTH AMONG THOSE SUFFERING FROM MYHRE SYNDROME, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF:
A) ADVICE, COUNSELLING AND SUPPORT TO THOSE SUFFERING FROM MYHRE SYNDROME.
B) INFORMATION SHARING PROGRAMMES TO RAISE AWARENESS ON ALL ASPECTS OF MYHRE SYNDROME.
C) SUPPORT TO DEVELOP MEDICAL PRACTICES RELATING TO THE DIAGNOSES AND TREATMENT OF MYHRE SYNDROME.
2) TO RELIEVE THE NEEDS OF THOSE SUFFERING FROM MYHRE SYNDROME, AND THEIR FAMILIES, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF RESPITE, ADVICE AND SUPPORT.
