Dogfen lywodraethu THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO
Rhif yr elusen: 1186647
Mae adrodd am yr elusen yn gyfredol (yn brydlon)
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu'r elusen.
CIO - FOUNDATION Registered 28 Nov 2019 as amended on 22 Feb 2021
Gwrthrychau elusennol
THE OBJECTS OF THE CIO ARE:
A) TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE RELIEF OF PERSONS AFFECTED BY SMITH-MAGENIS SYNDROME AND ANY ASSOCIATED CONDITION,
B) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF SMITH-MAGENIS SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY,
C) TO ADVANCE PUBLIC EDUCATION BY PROMOTING RESEARCH INTO THE MANAGEMENT OF SMITH-MAGENIS SYNDROME AND TO PUBLISH USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO SMITH-MAGENIS SYNDROME.
