Dogfen lywodraethu H-ABC FOUNDATION UK
Dogfen lywodraethu
Nid dyma destun llawn dogfen lywodraethu'r elusen.
CONSTITUTION ADOPTED 25 NOV 2019 AS AMENDED ON 02 JUL 2020
Gwrthrychau elusennol
1.TO RELIEVE THE NEEDS OF HYPOMYELINATION WITH ATROPHY OF BASAL GANGLIA AND CEREBELLUM (H-ABC)SUFFERERS AND THEIR FAMILIES IN PARTICULAR, BUT NOT EXCLUSIVELY,BY: - A)PROVIDING HELP, SUPPORT AND ADVICE TO FAMILIES FROM OUR OWN EXPERIENCE. B)PROMOTING AWARENESS AND UNDERSTANDING OF HYPOMYELINATION WITH ATROPHY OF BASAL GANGLIA AND CEREBELLUM (H-ABC) C)SUPPORTING RESEARCH THAT IS DEDICATED TO HYPOMYELINATION WITH ATROPHY OF BASAL GANGLIA AND CEREBELLUM (H-ABC), THE USEFUL RESULTS OF WHICH SHALL BE PUBLISHED
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