Dogfen lywodraethu ALEXANDRA MURPHY HHT FOUNDATION
Rhif yr elusen: 1197342
Mae'r adroddiad gan yr elusen wedi'i ddiweddaru (ar amser)
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu'r elusen.
CIO - FOUNDATION Registered 05 Jan 2022
Gwrthrychau elusennol
THE RELIEF OF SICKNESS AND THE ADVANCEMENT OF HEALTH OF HHT (HEREDITARY HAEMORRHAGIC TELANGIECTASIA) SUFFERERS, MORE SPECIALLY THOSE WHO SUFFER FROM PULMONARY AVMS (ARTERIOVENOUS MALFORMATIONS) IN PARTICULAR, BUT NOT EXCLUSIVELY BY:
A) RAISING AWARENESS OF HHT AND PULMONARY AVMS, THE SYMPTOMS ASSOCIATED WITH IT AND
TREATMENT.
B) PROMOTING RESEARCH INTO THE UNDERSTANDING, DIAGNOSIS, CAUSE, AND TREATMENT OF HHT AND PULMONARY AVMS THROUGH TREATMENTS AND GRANTS RELATED TO RESEARCH PROJECTS IN ORDER THAT THE USEFUL RESULTS OF RESEARCH ARE DISSEMINATED FOR PUBLIC BENEFIT.
C) PROVIDING SUPPORT TO PATIENTS AND FAMILIES SUFFERING FROM HHT IN ANY WAY THE TRUSTEES THINK FIT.
