Y Gofrestr Elusennau - Y Comisiwn Elusennau EI CURE PROJECT UK

Rhif yr elusen: 1205112
Cofrestrwyd yn ddiweddar
Mae'r elusen hon wedi cael ei chofrestru'n ddiweddar - nid oes angen iddi ddiweddaru'i gwybodaeth hyd 10 mis ar ôl i'w chyfnod ariannol cyntaf ddod i ben

Gweithgareddau - sut mae'r elusen yn gwario ei harian

Epidermolytic Ichthyosis (EI) is a painful genetic skin disease where the skin blisters with minimal trauma, but also grows excessively fast limiting mobility and resulting in frequent skin infections. There is no cure, and most people who are affected spend 2-4 hours caring for their skin and wounds every single day. The EI Cure Project UK is a non-profit organisation which includes patient a