Dogfen lywodraethu CDKL5 UK

Rhif yr elusen: 1207922
Cofrestrwyd yn ddiweddar

Dogfen lywodraethu

Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd.
Nid dyma destun llawn dogfen lywodraethu'r elusen.

CIO - FOUNDATION Registered 18 Apr 2024

Gwrthrychau elusennol

THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT THE HEALTH OF INDIVIDUALS DIAGNOSED WITH AND AFFECTED BY CDKL5 IN PARTICULAR BY: A PROVIDING ASSISTANCE AND ADVOCACY IN THE FORM OF SUPPORT GROUPS FOR THE PATIENT COMMUNITY. B PROVIDING UP TO DATE AND RELEVANT INFORMATION TO INDIVIDUALS AND THEIR REPRESENTATIVE DIAGNOSED WITH THE CONDITION AND TO MEDICAL PROFESSIONALS AS A MEANS OF IMPROVING UNDERSTANDING AND RAISING AWARENESS OF CDKL5 C PROMOTING AND SUPPORT RESEARCH IN CDKL5


Argraffu manylion yr elusen