Dogfen lywodraethu CDKL5 UK
Rhif yr elusen: 1207922
Cofrestrwyd yn ddiweddar
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y’i sefydlwyd.
Nid dyma destun llawn dogfen lywodraethu’r elusen.
Nid dyma destun llawn dogfen lywodraethu’r elusen.
CIO - FOUNDATION Registered 18 Apr 2024
Gwrthrychau elusennol
THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT THE HEALTH OF INDIVIDUALS DIAGNOSED WITH AND AFFECTED BY CDKL5 IN PARTICULAR BY: A PROVIDING ASSISTANCE AND ADVOCACY IN THE FORM OF SUPPORT GROUPS FOR THE PATIENT COMMUNITY. B PROVIDING UP TO DATE AND RELEVANT INFORMATION TO INDIVIDUALS AND THEIR REPRESENTATIVE DIAGNOSED WITH THE CONDITION AND TO MEDICAL PROFESSIONALS AS A MEANS OF IMPROVING UNDERSTANDING AND RAISING AWARENESS OF CDKL5 C PROMOTING AND SUPPORT RESEARCH IN CDKL5
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Dywedwch wrthym a ydych chi’n derbyn cwcis
Rydym yn defnyddio cwcis i gasglu gwybodaeth am y ffordd rydych chi’n defnyddio Cofrestr Elusennau a Gwasanaethau Digidol y Comisiwn Elusennau, megis y tudalennau rydych chi’n ymweld â nhw.