Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu'r elusen.
CIO - FOUNDATION Registered 18 Apr 2024
Gwrthrychau elusennol
THE OBJECTS OF THE CIO ARE
TO PRESERVE AND PROTECT THE HEALTH OF INDIVIDUALS DIAGNOSED WITH AND AFFECTED BY CDKL5 IN PARTICULAR BY:
A PROVIDING ASSISTANCE AND ADVOCACY IN THE FORM OF SUPPORT GROUPS FOR THE PATIENT COMMUNITY.
B PROVIDING UP TO DATE AND RELEVANT INFORMATION TO INDIVIDUALS AND THEIR REPRESENTATIVE DIAGNOSED WITH THE CONDITION AND TO MEDICAL PROFESSIONALS AS A MEANS OF IMPROVING UNDERSTANDING AND RAISING AWARENESS OF CDKL5
C PROMOTING AND SUPPORT RESEARCH IN CDKL5
