Trosolwg o'r elusen ACTION FOR BPAN

Rhif yr elusen: 1210529
Cofrestrwyd yn ddiweddar
Mae'r elusen hon wedi cael ei chofrestru'n ddiweddar - nid oes angen iddi ddiweddaru'i gwybodaeth hyd 10 mis ar ôl i'w chyfnod ariannol cyntaf ddod i ben

Gweithgareddau - sut mae'r elusen yn gwario ei harian

Action for BPAN supports individuals with BPAN (Beta-Propeller Protein-Associated Neurodegeneration), a rare neurodegenerative disorder. We fundraise for research, raise awareness, and provide support to families affected by BPAN. Based in the UK and operating globally, we collaborate with medical professionals and communities to improve lives and advance treatments and cures for BPAN.