Dogfen lywodraethu THE PAGET'S DISEASE OF BONE ASSOCIATION

Rhif yr elusen: 1213575
Cofrestrwyd yn ddiweddar

Dogfen lywodraethu

Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd.
Nid dyma destun llawn dogfen lywodraethu'r elusen.

CIO - ASSOCIATION Registered 09 Jun 2025

Gwrthrychau elusennol

TO PRESERVE AND PROTECT THE HEALTH OF PERSONS SUFFERING FROM PAGET'S DISEASE OF BONE AND THEIR FAMILIES BY: A) PROVIDING INFORMATION AND SUPPORT, B) RAISING AWARENESS ABOUT PAGET'S DISEASE OF BONE BOTH WITHIN THE MEDICAL AND ALLIED HEALTH PROFESSIONS, AND AMONGST THE GENERAL PUBLIC, C) SUPPORTING AND FUNDING RESEARCH PROJECTS IN THE FIELD OF PAGET'S DISEASE OF BONE OR ITS TREATMENT, (D) WORKING AND COORDINATING WITH OTHER ORGANISATIONS (CHARITABLE, VOLUNTARY, GOVERNMENTAL OR OTHERWISE) TO SUPPORT THOSE AFFECTED BY RARE BONE DISORDERS; AND (E) UNDERTAKING ANY OTHER ACTIONS AND/OR OBJECTS IN SUPPORT OF PERSONS SUFFERING FROM PAGET'S DISEASE OR MAY BE AT RISK OF SUFFERING FROM PAGET'S DISEASE, THEIR FAMILIES AND CARERS.


Argraffu manylion yr elusen