Mae'r adroddiad gan yr elusen wedi'i ddiweddaru (ar amser)
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu'r elusen.
CIO - FOUNDATION Registered 29 May 2019 as amended on 21 Feb 2024
Gwrthrychau elusennol
THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE IN THE UNITED KINGDOM LIVING WITH THE MEDICAL CONDITION ATTR AMYLOIDOSIS (KNOWN AS THE ‘CONDITION’) IN PARTICULAR BUT NOT EXCLUSIVELY BY:
A) PROVIDING INFORMATION, SUPPORT AND ADVICE TO PEOPLE LIVING WITH THE CONDITION, THEIR FAMILIES AND CARERS;
B) ADVOCATING TO ENSURE THAT EVERY PERSON HAS TIMELY AND EFFECTIVE DIAGNOSIS, TREATMENT AND CARE OF THE CONDITION;
C) WORKING CLOSELY WITH ALL STAKEHOLDERS TO FACILITATE THE AVAILABILITY OF EFFECTIVE TREATMENTS FOR THE CONDITION.
D) FUNDING AND SUPPORTING RESEARCH TO ADVANCE SCIENTIFIC UNDERSTANDING OF THE CONDITION AND ITS EFFECTIVE TREATMENT AND TO PUBLISH THE USEFUL RESULTS THEREOF FOR THE PUBLIC BENEFIT.
