MOTOR NEURONE DISEASE ASSOCIATION
Charity overview
Activities - how the charity spends its money
The MND Association is the only national charity in England, Wales and Northern Ireland dedicated to improving care and support for people affected by MND, funding and improving research, and campaigning and raising awareness so that the needs of people with MND are addressed by society. Visit www.mndassociation.org
Income and expenditure
Data for financial year ending 31 December 2023
Total income:
£37,922,000
| Donations and legacies | £33.80m | |
| Charitable activities | £0 | |
| Other trading activities | £1.48m | |
| Investments | £1.06m | |
| Other | £1.58m |
Total expenditure:
£26,785,000
| Raising funds | £4.99m | |
| Charitable activities | £17.88m | |
| Other | £3.91m |
£208,000 investments gains (losses)
Total income includes £1,284,300 from 1 government grant(s)
Charitable expenditure
Charitable expenditure with investment gains
Charitable expenditure
Some charities generate all, or a substantial part, of their income from investments which may have been donated to the charity as endowment or set aside by the charity from its own resources in the past. Such investments usually take the form of stocks and shares but may include other assets, such as property, that are capable of generating income and/or capital growth.
In managing their spending and investments charities need to strike a balance between the needs of future and current beneficiaries. They also need to take account of spending commitments that may stretch over a number of future years. To do this, charities will normally adopt an investment strategy designed to generate both income and capital growth. To maximise returns trustees may commit to investment strategies for several years.
Investments can experience large swings in value so trustees may, in a particular year, decide to realise and spend part of their charity’s capital or to invest part of its income.
By clicking the investment gains checkbox the charitable spending bar is adjusted to take account of capital growth as well as income. This shows the balance the charity is striking, between spending on current beneficiaries and retaining resources for future beneficiaries.
| Raising funds and other expenditure | £8.91m | |
| Charitable expenditure | £17.88m | |
| Retained for future use | £11.14m |
People
215 Employee(s)
12 Trustee(s)
1300 Volunteer(s)
Employees with total benefits over £60,000
| Number of employees | |
|---|---|
| £60k to £70k | 8 |
| £70k to £80k | 2 |
| £80k to £90k | 2 |
| £90k to £100k | 3 |
| £100k to £110k | 1 |
| £130k to £140k | 1 |
Fundraising
Trading
Trustee payments
What, who, how, where
- Disability
- People With Disabilities
- Makes Grants To Individuals
- Makes Grants To Organisations
- Provides Human Resources
- Provides Services
- Provides Advocacy/advice/information
- Sponsors Or Undertakes Research
- Throughout England And Wales
- Northern Ireland
Governance
- 14 May 1986: Standard registration
- 14 September 2020: Funds received from 1071380 JR AND SA BROOKS CHARITABLE TRUST
- 13 May 2022: Funds received from 1025388 ROTARY CLUB OF RICKMANSWORTH TRUST FUND
- 24 June 2022: Funds received from 1106188 SOUTH MONTGOMERYSHIRE VOLUNTEER BUREAU LIMITED
- 09 August 2022: Funds received from 1058958 F.A.B.L.E (FOR A BETTER LIFE WITH EPILEPSY)
- 23 August 2022: Funds received from 271235 MARK ARMITAGE CHARITABLE TRUST
- 08 August 2023: Funds received from 1030670 INNER WHEEL CLUB OF CLIFTON BENEVOLENT FUND
- 20 September 2024: Funds received from 1164251 THE JEPSON-HEARN CHARITY WILL TRUST
- 15 November 2024: Funds received from 326995 THE FORBES CHARITABLE TRUST
- 12 December 2024: Funds received from 1124011 ROTARY CLUB OF WHITBY ENDEAVOUR CHARITABLE TRUST
- 12 February 2025: Funds received from 238259 CRITCHLEY CHARITABLE TRUST
- 01 April 2025: Funds received from 1028586 THE INNER WHEEL CLUB OF BROMLEY KENT BENEVOLENT FU...
- MND ASSOCIATION (Working name)
- MNDA (Working name)
- Care Quality Commission
- Bullying and harassment policy and procedures
- Campaigns and political activity policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
12 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||||||||
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| Alan Philip Graham MBE | Trustee | 26 June 2024 |
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| Dr Michael Hope | Trustee | 26 June 2024 |
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| Hazel Carter | Trustee | 01 July 2023 |
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| Dr John Ealing | Trustee | 25 February 2023 |
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| Ian Lev | Trustee | 27 June 2022 |
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| Simon Croxford | Trustee | 27 June 2022 |
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| Kirrie Todd | Trustee | 28 May 2022 |
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| Elizabeth Ellis | Trustee | 01 July 2021 |
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| James MARSHALL | Trustee | 16 March 2021 |
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| Dr Usman Khan | Trustee | 16 March 2021 |
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| Shaun Gerard Mc Gee | Trustee | 16 May 2020 |
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| Catherine Knights | Trustee | 13 July 2019 |
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Financial history
Financial period end date
| Income / Expenditure | 31/12/2019 | 31/12/2020 | 31/12/2021 | 31/12/2022 | 31/12/2023 | ||
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Total gross income | £18.63m | £19.91m | £28.94m | £30.05m | £37.92m | |
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Total expenditure | £18.12m | £15.58m | £18.06m | £22.80m | £26.79m | |
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Income from government contracts | N/A | N/A | N/A | N/A | N/A | |
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Income from government grants | N/A | £379.00k | N/A | N/A | £1.28m | |
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Income - Donations and legacies | £17.56m | £18.72m | £28.08m | £28.41m | £33.80m | |
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Income - Other trading activities | £873.00k | £705.00k | £743.00k | £906.00k | £1.48m | |
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Income - Charitable activities | £0 | £0 | £0 | £0 | £0 | |
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Income - Endowments | £0 | £0 | £0 | £0 | £0 | |
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Income - Investment | £181.00k | £121.00k | £69.00k | £276.00k | £1.06m | |
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Income - Other | £24.00k | £365.00k | £56.00k | £456.00k | £1.58m | |
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Income - Legacies | £5.33m | £6.01m | £8.52m | £8.89m | £10.37m | |
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Expenditure - Charitable activities | £12.35m | £9.87m | £12.21m | £15.91m | £17.88m | |
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Expenditure - Raising funds | £2.85m | £2.73m | £3.13m | £3.85m | £4.99m | |
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Expenditure - Governance | £183.00k | £123.00k | £61.00k | £175.00k | £128.00k | |
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Expenditure - Grants institution | £4.52m | £3.00m | £4.99m | £7.57m | £6.69m | |
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Expenditure - Investment management | £0 | £0 | £0 | £0 | £0 | |
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Expenditure - Other | £2.92m | £2.99m | £2.72m | £3.04m | £3.91m |
Assets and liabilities
Definitions for assets and liabilities
These are assets, other than investments, which are held for more than 12 months and used to run and administer the charity such as buildings, offices, exhibits and fixtures and fittings.
Long term InvestmentsInvestments are assets held by the charity with the sole aim of generating income which will be used for their charitable purposes such as deposit accounts, shares, rental property and unit trusts.
Investment assets are re-valued every year and included in the balance sheet at their current market value.
Long term investments are held for more than 12 months.
These are assets held generally for less than 12 months such as cash and bank balances, debtors, investments to be sold within the coming year and trading stock.
Defined benefit pension scheme asset or liabilityThis is a surplus or deficit in any defined benefit pension scheme operated and represents a potential long-term asset or liability.
Total liabilitiesThese are all the amounts owed by the charity at the balance sheet date to third parties such as bills due but not yet paid, bank overdrafts and loans and mortgages.
| Asset / Liability | 31/12/2019 | 31/12/2020 | 31/12/2021 | 31/12/2022 | 31/12/2023 | ||
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Own use assets | £720.00k | £835.00k | £581.00k | £444.00k | £304.00k | |
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Long-term investments | £0 | £0 | £0 | £5.00m | £5.21m | |
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Other assets | £24.57m | £27.39m | £40.59m | £45.79m | £59.59m | |
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Defined benefit pension scheme asset or liability | £0 | £0 | £0 | £0 | £0 | |
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Total liabilities | £14.52m | £13.10m | £15.20m | £18.02m | £20.77m |
Accounts and annual returns
| Title | Reporting year | Date received | Received | Download |
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| Annual return | 31 December 2023 | 24 October 2024 | On Time | |
| Accounts and TAR | 31 December 2023 | 24 October 2024 | On Time | Download Open in new window |
| Annual return | 31 December 2022 | 10 October 2023 | On Time | |
| Accounts and TAR | 31 December 2022 | 26 October 2023 | On Time | Download Open in new window |
| Annual return | 31 December 2021 | 04 October 2022 | On Time | |
| Accounts and TAR | 31 December 2021 | 04 October 2022 | On Time | Download Open in new window |
| Annual return | 31 December 2020 | 19 October 2021 | On Time | |
| Accounts and TAR | 31 December 2020 | 19 October 2021 | On Time | Download Open in new window |
| Annual return | 31 December 2019 | 28 October 2020 | On Time | |
| Accounts and TAR | 31 December 2019 | 28 October 2020 | On Time | Download Open in new window |