ECTODERMAL DYSPLASIA SOCIETY

Charity number: 1089135
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.

Income and expenditure

Data for financial year ending 31 December 2024

Total income: £77,208
Total expenditure: £72,613

People

11 Trustee(s)

10 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 31 October 2001: Standard registration
Organisation type:
Other
Other names:
  • EDS (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Financial reserves policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Trustee conflicts of interest policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

11 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
PAUL COLLACOTT Chair
None on record
Helen Wickins Trustee 12 July 2025
None on record
Elaine Aylward Trustee 22 March 2025
None on record
Larissa Donna Pelham Trustee 25 April 2020
EALING AND ACTON SUPPORT ENTERPRISE
Recently registered
Nick Briggs Trustee 25 April 2020
None on record
Andy Ponting Trustee 06 May 2017
None on record
Stuart Atkiss Trustee 07 May 2016
None on record
Scott Gallacher Trustee 16 May 2015
None on record
ALAN WALLER Trustee 24 April 2013
None on record
SHARON COOPER Trustee 26 November 2012
None on record
DIANA PERRY Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 31/12/2023 31/12/2024
Total gross income £42.81k £34.16k £71.57k £62.77k £77.21k
Total expenditure £48.20k £43.86k £50.98k £71.23k £72.61k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2024 02 April 2025 On Time
Accounts and TAR 31 December 2024 02 April 2025 On Time Download Open in new window
Annual return 31 December 2023 11 April 2024 On Time
Accounts and TAR 31 December 2023 11 April 2024 On Time Download Open in new window
Annual return 31 December 2022 16 May 2023 On Time
Accounts and TAR 31 December 2022 16 May 2023 On Time Download Open in new window
Annual return 31 December 2021 11 September 2022 On Time
Accounts and TAR 31 December 2021 11 September 2022 On Time Download Open in new window
Annual return 31 December 2020 29 May 2021 On Time
Accounts and TAR 31 December 2020 29 May 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 14 JULY 2001 AS AMENDED ON 8 MAY 2004 AS AMENDED ON 07 MAY 2016 as amended on 15 Oct 2022

Charitable objects

THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY ECTODERMAL DYSPLASIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO A) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO ECTODERMAL DYSPLASIA AND ITS IMPLICATIONS FOR THE FAMILY. B) THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ECTODERMAL DYSPLASIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED. IN PRACTICE WORLDWIDE

Contact information

Address:
UNIT 1 MAIDA VALE BUSINESS CENTRE
LECKHAMPTON
CHELTENHAM
GLOS
GL53 7ER
Phone:
01242261332
Email:
diana@edsociety.co.uk
Website:

www.edsociety.co.uk Open in new window