THE EHLERS-DANLOS SUPPORT UK

Charity number: 1157027
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'

Income and expenditure

Data for financial year ending 31 March 2025

Total income: £434,770
Total expenditure: £392,489

People

11 Trustee(s)

85 Volunteer(s)

Employees with total benefits over £60,000

Number of employees
£60k to £70k 1

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 13 May 2014: Standard registration
  • 20 October 2022: Funds received from 1014641 EHLERS-DANLOS SUPPORT UK
Organisation type:
Charitable company
Other names:

No other names

Company number:
08924646 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

11 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Charlotte Emily Williams Chair 07 March 2020
None on record
Natasha Larkin Trustee 22 November 2025
None on record
Sarah Bullock Trustee 22 November 2025
None on record
Kathryn Jayne Caldwell Trustee 23 November 2024
None on record
Helen Ball Trustee 23 November 2024
NATIONAL VOICES
Received: On time
Dr Jill Harrison Trustee 14 September 2024
GREATER MANCHESTER SPORTS PARTNERSHIP
Received: On time
Timothy Peter de Winter Trustee 25 July 2024
PELICAN CANCER FOUNDATION
Received: On time
Yanina Graciela Aubrey-Gimenez Trustee 11 May 2024
None on record
Laure Francoise Marie Nas De Tourris Trustee 15 June 2022
None on record
Anne Dominique Myra Lavery Trustee 19 February 2022
None on record
Alison Jane Roux Trustee 19 February 2022
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2021 31/03/2022 31/03/2023 31/03/2024 31/03/2025
Total gross income £406.89k £483.71k £423.72k £380.30k £434.77k
Total expenditure £405.50k £496.38k £537.08k £428.56k £392.49k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants £10.00k N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2025 15 December 2025 On time
Accounts and TAR 31 March 2025 15 December 2025 On time Download Open in new window
Annual return 31 March 2024 23 December 2024 On time
Accounts and TAR 31 March 2024 23 December 2024 On time Download Open in new window
Annual return 31 March 2023 05 January 2024 On time
Accounts and TAR 31 March 2023 05 January 2024 On time Download Open in new window
Annual return 31 March 2022 22 December 2022 On time
Accounts and TAR 31 March 2022 22 December 2022 On time Download Open in new window
Annual return 31 March 2021 21 December 2021 On time
Accounts and TAR 31 March 2021 21 December 2021 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES INCORPORATED 13 FEB 2014 AS AMENDED BY SPECIAL RESOLUTION(S) DATED 25 MAY 2016 as amended on 11 Jun 2022 as amended on 13 May 2023

Charitable objects

FOR THE RELIEF OF PERSONS SUFFERING FROM EHLERS-DANLOS SYNDROME AND TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OF THE SYNDROME.

Contact information

Address:
International House
45-55 Commercial Street
London
E1 6BD
Phone:
02087365604
Email:
info@ehlers-danlos.org
Website:

www.ehlers-danlos.org Open in new window