THE HYPERMOBILITY SYNDROMES ASSOCIATION

Charity number: 1186735
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Supporting those living with hypermobility syndromes of all types, through advocacy, validation of the reality of living with these conditions, support towards rehabilitation and positive self-management, and individual and professional health education. This includes: Local groups, helpline, educational and social events, online support, and IS accredited information online and in print.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £34,495
Total expenditure: £35,265

People

5 Trustee(s)

39 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 04 December 2019: CIO registration
  • 10 September 2021: Funds received from 1011063 THE HYPERMOBILITY SYNDROMES ASSOCIATION
Organisation type:
CIO
Other names:
  • THE HMSA (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Paying staff
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Mark Haddon Austin Chair 01 December 2021
None on record
Tia Cheang Trustee 01 August 2023
THE COLLEGE OF RADIOGRAPHERS
Received: On time
Zoe Lomax Trustee 15 May 2021
None on record
Nichola Shelley Gardner Trustee 01 May 2021
None on record
Rachel King Trustee 16 December 2020
THE PATIENTS ASSOCIATION
Received: On time

Financial history

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Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £47.48k £35.13k £29.23k £34.49k
Total expenditure £21.01k £34.75k £39.54k £35.27k
Income from government contracts N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 13 September 2024 On Time
Accounts and TAR 31 December 2023 13 September 2024 On Time Download Open in new window
Annual return 31 December 2022 28 July 2023 On Time
Accounts and TAR 31 December 2022 28 July 2023 On Time Download Open in new window
Annual return 31 December 2021 20 December 2022 50 days late
Accounts and TAR 31 December 2021 20 December 2022 50 days late Download Open in new window
Annual return 31 December 2020 23 September 2021 On Time
Accounts and TAR 31 December 2020 23 September 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 04 Dec 2019 as amended on 08 Oct 2023

Charitable objects

THE OBJECT OF THE CIO IS: FOR THE PUBLIC BENEFIT TO PRESERVE AND PROTECT GOOD HEALTH AMONG, AND RELIEVE THE NEEDS OF, PEOPLE AFFECTED BY HYPERMOBILITY SYNDROMES, IN PARTICULAR BY: 1) PROVIDING VALIDATION, EDUCATION, REHABILITATION AND POSITIVE SELF-MANAGEMENT ADVICE FOR PEOPLE WITH HYPERMOBILITY RELATED DISORDERS AND THEIR ENTIRE SUPPORT NETWORK, INCLUDING THEIR FAMILIES, TEACHERS, FRIENDS AND COLLEAGUES. ENCOURAGING A CULTURE OF SUPPORT WHILE RAISING AWARENESS, KNOWLEDGE AND SELF-DETERMINATION. 2) IMPROVING THE QUALITY OF LIFE, AND ENABLING EFFECTIVE SELF-MANAGEMENT FOR AFFECTED INDIVIDUALS THROUGH A VARIETY OF RESOURCES, INCLUDING (BUT NOT LIMITED TO): SELF MANAGEMENT PROGRAMS, SUPPORT GROUPS, SOCIAL MEDIA, PUBLICATIONS, HELPLINE AND SUPPORT FROM OUR EXPERT PATIENT VOLUNTEERS. 3) WORKING WITH AND EDUCATING THE RELEVANT MEDICAL, SOCIAL AND HEALTH PROFESSIONALS IN DEVELOPING AWARENESS AND UNDERSTANDING OF THE BIOPSYCHOSOCIAL IMPACT OF HYPERMOBILITY RELATED DISORDERS FOR INDIVIDUALS AND THEIR ENTIRE SUPPORT NETWORK. 4) SUPPORTING AND ENCOURAGING INDIVIDUALS IN THEIR PURSUIT OF DIAGNOSIS AND TREATMENT, VIA SIGNPOSTING TO APPROPRIATE SERVICES WHERE NECESSARY. 5) PROVIDING AN ENVIRONMENT WHICH ENABLES PEOPLE AFFECTED BY A HYPERMOBILITY SYNDROME TO VOLUNTEER, FURTHERING THE CHARITY’S AIMS WHILST DEVELOPING THEIR OWN WORKPLACE SKILLS AND CONFIDENCE. 6) MAINTAINING THE INFORMATION STANDARD, AS WAS ACCREDITED BY NHS ENGLAND, SO AS TO ENSURE THE HIGH STANDARD OF ALL HMSA PUBLICATIONS IN WHICHEVER FORMAT DEEMED SUITABLE. 7) WORKING WITH OTHER ORGANISATIONS TO UNDERTAKE AND PROMOTE RESEARCH INTO HYPERMOBILITY RELATED DISORDERS, THE USEFUL RESULTS OF WHICH WILL BE PUBLISHED FOR THE PUBLIC BENEFIT. TO SEEK TO BE THE PATIENT PARTNER AND TO DISSEMINATE RESEARCH, SURVEYS AND INVESTIGATIONS WHILST MAINTAINING OUR HIGH STANDARD OF INFORMATION. 8) COLLABORATING WITH OTHER ORGANISATIONS ON POLICIES, STRATEGIES AND PROJECTS, WHICH ARE SYNERGISTIC WITH THE CIO’S OWN STRATEGY AND VALUES.

Contact information

Address:
49 Greek Street
London
W1D 4EG
Phone:
03330116388
Email:
info@hypermobility.org
Website:

hypermobility.org