TTPNETWORK

Charity Number: 1195109
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

TO RELIEVE THE NEEDS OF THOSE EXPERIENCING OR AFFECTED BY THROMBOTIC THROMBOCYTOPENIC PURPURA (TTP) IN THE UK AND THE REPUBLIC OF IRELAND WITH AN INTERNATIONAL REACH. BY:- THE PROVISION OF INFORMATION, ADVICE, SUPPORT, REPRESENTATION AND ADVOCACY. TO IMPROVE EQUITY OF ACCESS TO TREATMENTS, PRESERVE AND IMPROVE THE QUALITY OF LIFE AND PROMOTE BEST PRACTICE AND ADVANCEMENT OF EDUCATION IN TTP.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £44,769
Total expenditure: £24,232

People

4 Trustee(s)

3 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Defined Groups
  • The General Public/mankind
How the charity helps:
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Ireland

Governance

Registration history:
  • 09 July 2021: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Kirandeep Kaur Grewal Trustee 21 August 2024
THE CANCER TREATMENT AND RESEARCH TRUST CIO
Received: 145 days late
Julie Hallam Trustee 21 August 2024
None on record
Catherine Anne Howell OBE Trustee 18 February 2021
None on record
Saida Banu Ladha Trustee 18 February 2021
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2022 31/03/2023 31/03/2024
Total gross income £3.61k £25.27k £44.77k
Total expenditure £311 £2.47k £24.23k
Income from government contracts N/A N/A N/A
Income from government grants N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 31 October 2024 On Time
Accounts and TAR 31 March 2024 31 October 2024 On Time Download Open in new window
Annual return 31 March 2023 29 January 2024 On Time
Accounts and TAR 31 March 2023 09 February 2024 9 days late Download Open in new window
Annual return 31 March 2022 10 November 2022 On Time
Accounts and TAR 31 March 2022 10 November 2022 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 09 Jul 2021

Charitable objects

THE OBJECTS OF THE CIO ARE:- TO RELIEVE THE NEEDS OF PERSONS EXPERIENCING OR AFFECTED BY THROMBOTIC THROMBOCYTOPENIC PURPURA (TTP) IN THE UNITED KINGDOM AND THE REPUBLIC OF IRELAND WITH AN INTERNATIONAL REACH. IN PARTICULAR BUT NOT EXCLUSIVELY, BY:- THE PROVISION OF INFORMATION, ADVICE, SUPPORT, REPRESENTATION AND ADVOCACY IN THE INTEREST OF SOCIAL WELFARE, TO IMPROVE EQUITY OF ACCESS TO TREATMENTS, PRESERVE LIFE AND TO IMPROVE THE QUALITY OF LIFE; PROMOTING BEST PRACTICE AND THE ADVANCEMENT OF EDUCATION OF TTP IN RELATION TO THE CAUSE, DIAGNOSES, PREVENTION, ALLEVIATION, TREATMENTS AND CURE BY RAISING AWARENESS AND PROVIDING INFORMATION TO THE PUBLIC AND HEALTHCARE PROFESSIONALS NATIONALLY, AND INTERNATIONALLY; REPRESENTING THE PATIENT VOICE AND STRENGTHEN PATIENT ADVOCACY ON UK AND INTERNATIONAL GOVERNMENT AND NON-GOVERNMENT DEPARTMENTAL BODIES AND IN CONSULTATIONS; PROMOTING PUBLIC SUPPORT AND PROVIDING ASSISTANCE FOR THE CARRYING OUT OF RESEARCH BY MAKING GRANTS FOR THE BENEFIT OF PATIENTS WITH TTP; GENERATING INCOME THROUGH FUNDRAISING ACTIVITIES FOR THE PURPOSE OF IMPROVING PATIENT CARE; ENGAGING IN NONPARTISAN POLITICAL ACTIVITY PROVIDED THAT THE TRUSTEES ARE SATISFIED THAT THE PROPOSED ACTIVITIES WILL FURTHER THE PURPOSES OF THE CHARITY TO AN EXTENT JUSTIFIED BY THE RESOURCES COMMITTED AND THE ACTIVITY IS NOT THE DOMINANT MEANS BY WHICH THE CHARITY CARRIES OUT ITS OBJECTS; AND INTERFACING WITH OTHER CHARITABLE ORGANISATIONS AND CORPORATE PARTNERS TO COLLABORATE FOR THE BENEFIT OF PATIENTS AND THEIR FAMILIES. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH [SECTION7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND)ACT 2005] AND [SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008].

Contact information

Address:
61 Bridge Street
KINGTON
HR5 3DJ
Phone:
0740 393 2525
Email:
info@ttpnetwork.org.uk
Website:

www.ttpnetwork.org.uk Open in new window