THE MYALGIC ENCEPHALOPATHY ASSOCIATION LIMITED

Charity number: 801279
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To provide information and support for people with ME/CFS/PVFS

Income and expenditure

Data for financial year ending 31 December 2023

Total income:
£1,017,845

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Donations and legacies £825.33k
Charitable activities £142.87k
Other trading activities £0
Investments £49.64k
Other £0

Total expenditure:
£753,610

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Raising funds £9.88k
Charitable activities £743.73k
Other £0

£0 investments gains (losses)

Charitable expenditure

Charitable expenditure

Some charities generate all, or a substantial part, of their income from investments which may have been donated to the charity as endowment or set aside by the charity from its own resources in the past. Such investments usually take the form of stocks and shares but may include other assets, such as property, that are capable of generating income and/or capital growth.

In managing their spending and investments charities need to strike a balance between the needs of future and current beneficiaries. They also need to take account of spending commitments that may stretch over a number of future years. To do this, charities will normally adopt an investment strategy designed to generate both income and capital growth. To maximise returns trustees may commit to investment strategies for several years.

Investments can experience large swings in value so trustees may, in a particular year, decide to realise and spend part of their charity’s capital or to invest part of its income.

By clicking the investment gains checkbox the charitable spending bar is adjusted to take account of capital growth as well as income. This shows the balance the charity is striking, between spending on current beneficiaries and retaining resources for future beneficiaries.

Text alternative for this canvas graphic is in the data table below.
Raising funds and other expenditure £9.88k
Charitable expenditure £743.73k
Retained for future use £264.24k

People

13 Employee(s)

5 Trustee(s)

20 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

One or more trustees receive payments or benefits from the charity for providing services to the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 05 April 1989: Standard registration
  • 26 November 2018: Funds received from 1155446 NEXT CHAPTER
  • 11 May 2023: Funds received from 1077807 REMEMBER (THE CHRONIC FATIGUE SYNDROME SOCIETY)
  • 25 March 2024: Funds received from 1168259 BLACK COUNTRY NEUROLOGICAL ALLIANCE
Organisation type:
Charitable company
Other names:
  • THE ME ASSOCIATION (Working name)
  • THE ME SOCIETY (Working name)
  • MYALGIC ENCEPHALOMYELITIS ASSOCIATION (Previous name)
  • THE MYALGIC ENCEPHALOMYELITIS ASSOCIATION (Previous name)
  • THE MYALGIC ENCEPHALOPATHY ASSOCIATION (Previous name)
Company number:
02361986 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Risk management
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Michael Mitchell Trustee 16 May 2024
THE CHESTERFORDS VILLAGE HALL
Received: 151 days late
David Allen Trustee 20 February 2023
None on record
MARTINE AINSWORTH-WELLS Trustee 27 September 2013
None on record
Dr CHARLES BERNARD SHEPHERD Trustee
None on record
EWAN STUART DALE Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £555.71k £1.11m £1.26m £860.52k £1.02m
Total expenditure £499.97k £493.09k £486.33k £631.40k £753.61k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A
Income - Donations and legacies £513.59k £1.07m £1.21m £812.71k £825.33k
Income - Other trading activities £23.30k £22.97k £43.98k £35.07k £0
Income - Charitable activities £0 £0 £0 £0 £142.87k
Income - Endowments £0 £0 £0 £0 £0
Income - Investment £15.50k £7.51k £10.72k £12.74k £49.64k
Income - Other £3.32k £8.24k £0 £0 £0
Income - Legacies £192.82k £732.79k £703.72k £490.61k £509.34k
Expenditure - Charitable activities £499.97k £493.09k £486.33k £631.40k £743.73k
Expenditure - Raising funds £0 £0 £0 £0 £9.88k
Expenditure - Governance £4.30k £4.33k £6.97k £5.35k £5.13k
Expenditure - Grants institution £173.82k £150.34k £73.08k £101.61k £137.65k
Expenditure - Investment management £0 £0 £0 £0 £0
Expenditure - Other £0 £0 £0 £0 £0

Assets and liabilities

Definitions for assets and liabilities
Own use assets

These are assets, other than investments, which are held for more than 12 months and used to run and administer the charity such as buildings, offices, exhibits and fixtures and fittings.

Long term Investments

Investments are assets held by the charity with the sole aim of generating income which will be used for their charitable purposes such as deposit accounts, shares, rental property and unit trusts.
Investment assets are re-valued every year and included in the balance sheet at their current market value.
Long term investments are held for more than 12 months.

Other assets

These are assets held generally for less than 12 months such as cash and bank balances, debtors, investments to be sold within the coming year and trading stock.

Defined benefit pension scheme asset or liability

This is a surplus or deficit in any defined benefit pension scheme operated and represents a potential long-term asset or liability.

Total liabilities

These are all the amounts owed by the charity at the balance sheet date to third parties such as bills due but not yet paid, bank overdrafts and loans and mortgages.

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Asset / Liability 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Own use assets £146.96k £137.12k £128.39k £122.67k £112.75k
Long-term investments £0 £0 £0 £0 £0
Other assets £1.65m £2.25m £3.11m £3.32m £3.61m
Defined benefit pension scheme asset or liability £0 £0 £0 £0 £0
Total liabilities £76.10k £50.13k £126.36k £97.45k £117.56k

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 25 October 2024 On Time
Accounts and TAR 31 December 2023 25 October 2024 On Time Download Open in new window
Annual return 31 December 2022 20 October 2023 On Time
Accounts and TAR 31 December 2022 20 October 2023 On Time Download Open in new window
Annual return 31 December 2021 27 September 2022 On Time
Accounts and TAR 31 December 2021 27 September 2022 On Time Download Open in new window
Annual return 31 December 2020 08 October 2021 On Time
Accounts and TAR 31 December 2020 08 October 2021 On Time Download Open in new window
Annual return 31 December 2019 08 October 2020 On Time
Accounts and TAR 31 December 2019 08 October 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 16TH MARCH 1989 AS AMENDED BY SPECIAL RESOLUTIONS DATED 15TH JUNE 1991, 14TH JULY 2001 AND 3RD SEPTEMBER 2005. AS AMENDED BY SPECIAL RESOLUTION(S) DATED 18/11/2014

Charitable objects

THE OBJECTS OF THE COMPANY ARE A) TO OFFER RELIEF TO PERSONS OF ALL AGES WITH MYALGIC ENCEPHALOPATHY (ME) / CHRONIC FATIGUE SYNDROME (CFS) THROUGH THE PROVISION OF INFORMATION AND B) TO FURTHER EDUCATION IN ALL ASPECTS OF THE ILLNESS AND C) TO SUPPORT RESEARCH AND TO PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
UNIT 7 APOLLO OFFICE COURT
RADCLIVE ROAD
GAWCOTT
BUCKINGHAM
MK18 4DF
Phone:
01280818963
Email:
vicky.smith@meassociation.org.uk
Website:

www.meassociation.org.uk Open in new window