HAEMOCHROMATOSIS UK

Charity number: 1001307
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis. To encourage and support RESEARCHinto haemochromatosis. To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £423,698
Total expenditure: £394,085

People

6 Trustee(s)

40 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Other Defined Groups
How the charity helps:
  • Makes Grants To Organisations
  • Provides Other Finance
  • Provides Services
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 17 December 1990: Standard registration
Organisation type:
Charitable company
Other names:
  • HAEMOCHROMATOSIS UK (Working name)
  • HUK (Working name)
  • THE HAEMOCHROMATOSIS SOCIETY (Previous name)
Company number:
02541361 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Aaron Venables Trustee 28 February 2025
HOME-START CAMBRIDGESHIRE
Received: On time
Guillaume Fillias Trustee 28 February 2025
None on record
Nigel Brunyee Trustee 28 June 2024
None on record
Sarah Vousden Trustee 28 June 2024
None on record
Dieter Krapp Trustee 28 June 2024
FRIENDS OF LINCOLN CASTLE
Received: On time
Pippa Randolph Trustee 28 June 2024
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £364.70k £317.67k £366.14k £436.81k £423.70k
Total expenditure £324.53k £229.43k £326.02k £457.30k £394.09k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A £15.14k N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 28 March 2024 On Time
Accounts and TAR 31 December 2023 28 March 2024 On Time Download Open in new window
Annual return 31 December 2022 19 July 2023 On Time
Accounts and TAR 31 December 2022 19 July 2023 On Time Download Open in new window
Annual return 31 December 2021 11 July 2022 On Time
Accounts and TAR 31 December 2021 11 July 2022 On Time Download Open in new window
Annual return 31 December 2020 22 April 2021 On Time
Accounts and TAR 31 December 2020 22 April 2021 On Time Download Open in new window
Annual return 31 December 2019 23 April 2020 On Time
Accounts and TAR 31 December 2019 23 April 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM & ARTICLES OF ASSOCIATION INCORPORATED 20 SEPTEMBER 1990, AMENDED BY SPECIAL RESOLUTION DATED 29 NOVEMBER 1990 AND 19 JUNE 2010 AS REGISTERED AT COMPANIES HOUSE ON 12 JUL 2016 as amended on 24 Jul 2019 as amended on 28 Jun 2024

Charitable objects

1)TO PROVIDE FOR PERSONS WITH HEREDITARY HAEMOCHROMATOSIS OR ASSOCIATED DISEASES HELP WITH THOSE PROBLEMS(INCLUDING BUT NOT LIMITED TO DIAGNOSIS,MEDICAL CARE,TREATMENT & FINANCIAL BURDEN) RESULTING FROM THE DISEASES & TO PROVIDE SUCH OTHERS CHARITABLE RELIEF AS THE SOCIETY MAY THINK FIT.2.)TO UNDERTAKE FOR THE PUBLIC BENEFIT RESEARCH INTO THE DISEASES & TO PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH. 3.)TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC & THE MEDICAL PROFESSION INTO THE CAUSES OF:(A) INCREASING THE PROPORTION OF HAEMOCHROMATOTICS DIAGNOSED AS SUCH (B) PROMOTING DIAGNOSIS AT AN EARLY STAGE BEFORE THE ONSET OF IRREVERSIBLE ORGAN DAMAGE.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
The Flaxmill
Flaxmill Lane
Pinchbeck
Spalding
Lincolnshire
PE11 3YP
Phone:
03030401101
Email:
office@huk.org.uk
Website:

http://www.haemochromatosis.org.uk Open in new window