SOFT UK

Charity number: 1002918
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome), Trisomy 18 (Edwards' syndrome) and related disorders. SOFT UK runs a website, produces printed information and runs a volunteer befriender programme. SOFT UK also holds annual family days in England and Scotland and a biennial family day in Northern Ireland.

Income and expenditure

Data for financial year ending 30 April 2024

Total income: £80,300
Total expenditure: £54,936

People

9 Trustee(s)

15 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • The General Public/mankind
How the charity helps:
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 15 May 1991: Standard registration
Organisation type:
Trust
Other names:
  • SUPPORT ORGANISATION FOR TRISOMY 13 & 18 AND RELATED DISORDERS (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

9 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
MRS J FOWLER Chair 21 April 2011
None on record
John Christopher O'Toole Trustee 20 June 2024
None on record
Susan Wilson Trustee 01 April 2024
None on record
Deborah Louise Kadum Trustee 01 July 2022
None on record
Rebecca Margaret Wirth Trustee 28 March 2021
None on record
Laura Petrie Trustee 06 December 2020
None on record
ALISON PEARSON Trustee 05 March 2016
None on record
MRS L EGAN Trustee 04 May 2014
None on record
DR D ROBBINS Trustee 26 November 2011
None on record

Financial history

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Financial period end date

Income / Expenditure 30/04/2020 30/04/2021 30/04/2022 30/04/2023 30/04/2024
Total gross income £60.15k £62.95k £74.26k £45.41k £80.30k
Total expenditure £29.03k £32.90k £59.37k £67.15k £54.94k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 April 2024 28 January 2025 On Time
Accounts and TAR 30 April 2024 28 January 2025 On Time Download Open in new window
Annual return 30 April 2023 14 March 2024 14 days late
Accounts and TAR 30 April 2023 14 March 2024 14 days late Download Open in new window
Annual return 30 April 2022 19 January 2023 On Time
Accounts and TAR 30 April 2022 31 January 2023 On Time Download Open in new window
Annual return 30 April 2021 10 January 2022 On Time
Accounts and TAR 30 April 2021 10 January 2022 On Time Download Open in new window
Annual return 30 April 2020 16 December 2020 On Time
Accounts and TAR 30 April 2020 16 December 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

TRUST DEED DATED 26/04/1991 AS AMENDED BY ORDER DATED 23/09/2003 AS AMENDED BY DEED DATED 16/03/2012

Charitable objects

TO RELIEVE THE SICKNESS OF CHILDREN WITH CHROMOSOMATIC ABNORMALITY AND OTHER RARE MEDICAL CONDITIONS (FOR FURTHER DETAILS SEE CLAUSE 2 OF DECLARATION OF TRUST

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
11 Newlands Road
Uddingston
GLASGOW
G71 5QP
Phone:
07748772061
Email:
enquiries@soft.org.uk
Website:

www.soft.org.uk Open in new window