THE OSTEOPETROSIS SUPPORT TRUST

Charity number: 1013052
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.

Income and expenditure

Data for financial year ending 05 April 2024

Total income: £716
Total expenditure: £1,360

People

6 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

No information available

Trustee payments

No information available

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • Other Defined Groups
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 21 July 1992: Standard registration
Organisation type:
Trust
Other names:
  • O S T (Working name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
No policies declared
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Wendy Jayne Wilson Chair 25 August 2015
None on record
Michelle Edser Trustee 26 January 2022
None on record
Alexander Wilson Trustee 20 January 2020
None on record
Sarah Sullivan Trustee 25 August 2015
None on record
ALISON Pope Trustee
None on record
TRACEY ANN CUBBAGE Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 05/04/2020 05/04/2021 05/04/2022 05/04/2023 05/04/2024
Total gross income £1.42k £163 £175 £34 £716
Total expenditure £2.29k £360 £710 £729 £1.36k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 05 April 2024 05 February 2025 On time
Accounts and TAR 05 April 2024 Not required
Annual return 05 April 2023 05 February 2024 On time
Accounts and TAR 05 April 2023 Not required
Annual return 05 April 2022 31 January 2023 On time
Accounts and TAR 05 April 2022 Not required
Annual return 05 April 2021 04 February 2022 On time
Accounts and TAR 05 April 2021 Not required
Annual return 05 April 2020 20 April 2020 On time
Accounts and TAR 05 April 2020 Not required
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Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

TRUST DEED DATED 25TH APRIL 1992

Charitable objects

1.THE RELIEF OF SICKNESS OF PERSONS SUFFERING FROM OSTEOPETROSIS. 2.THE RELIEF OF POVERTY AMONGST PERSONS SUFFERING FROM OSTEOPETROSIS AND THEIR FAMILIES WHO ARE IN NEED.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
Blue Haze
Notch Road
Winstone
CIRENCESTER
GL7 7JU
Phone:
01285821051
Email:
info@osteopetrosis-support-trust.org.uk
Website:

Www.osteopetrosis-support-trust.org.uk