STURGE WEBER UK

Charity Number: 1016688
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The Charity exists to promote the interests of people affected by Sturge Weber syndrome and to engage in any charitable activities which may assist their wellbeing and to protect and preserve the health of their families, friends and helpers, by providing information and support, promoting research into Sturge Weber syndrome and raising public and professional awareness of the syndrome.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £43,103
Total expenditure: £51,209

People

5 Trustee(s)

2 Volunteer(s)

Employees with total benefits over £60,000

No information available

One or more of the employees were formerly trustees

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Provides Human Resources
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Scotland

Governance

Registration history:
  • 27 January 1993: Standard registration
Organisation type:
Other
Other names:
  • SW UK (Working name)
  • STURGE WEBER (UK) (Previous name)
  • STURGE WEBER FOUNDATION (UK) (Previous name)
  • SWF (UK) (Previous name)
  • SWF UK (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Marie Cavalier Chair 20 October 2019
None on record
Michael Grime Trustee 25 May 2024
None on record
Claire Trevor Trustee 07 May 2023
None on record
Steve Brocas Waters Trustee 07 May 2023
None on record
Carolyn Georgina Burns Trustee 06 May 2018
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £21.68k £18.40k £13.38k £30.29k £43.10k
Total expenditure £26.19k £11.24k £10.66k £38.36k £51.21k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 19 August 2024 On Time
Accounts and TAR 31 December 2023 19 August 2024 On Time Download Open in new window
Annual return 31 December 2022 29 September 2023 On Time
Accounts and TAR 31 December 2022 29 September 2023 On Time Download Open in new window
Annual return 31 December 2021 14 August 2022 On Time
Accounts and TAR 31 December 2021 Not Required
Annual return 31 December 2020 19 September 2021 On Time
Accounts and TAR 31 December 2020 Not Required
Annual return 31 December 2019 29 October 2020 On Time
Accounts and TAR 31 December 2019 Not Required
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 08/01/1993 AS AMENDED ON 09/12/2001 AS AMENDED ON 27/10/2013 as amended on 17 Jul 2021 as amended on 14 Sep 2021

Charitable objects

TO PROMOTE THE INTERESTS OF PERSONS AFFECTED BY STURGE WEBER SYNDROME AND TO ENGAGE IN ANY CHARITABLE ACTIVITIES WHICH MAY ASSIST THE WELLBEING OF SUCH PERSONS, AND ANCILLARY HERETO, TO PROTECT AND PRESERVE THE HEALTH OF THEIR FAMILIES, FRIENDS AND HELPERS

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
Milk Hall
Barkisland
HALIFAX
West Yorkshire
HX4 0DY
Phone:
01422820408
Email:
support@sturgeweber.org.uk
Website:

www.sturgeweber.org.uk Open in new window