ACTION FOR ME

Charity number: 1036419
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Action for M.E. was established for the relief of people suffering from the disease Myalgic Encephalomyelitis, (commonly known as M.E., or CFS/ME), and to provide information, advice and support, and to promote public education, campaigning and research into the disease. On a day to day basis we provide telephone support to people with M.E., manage Online M.E Centre and publish 'InterAction'.

Income and expenditure

Data for financial year ending 31 March 2024

Total income:
£1,734,551

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Donations and legacies £1.20m
Charitable activities £176.14k
Other trading activities £335.84k
Investments £23.85k
Other £0

Total expenditure:
£1,788,660

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Raising funds £445.51k
Charitable activities £1.34m
Other £0

£361 investments gains (losses)

Total income includes £32,528 from 1 government grant(s)

Charitable expenditure

Charitable expenditure

Some charities generate all, or a substantial part, of their income from investments which may have been donated to the charity as endowment or set aside by the charity from its own resources in the past. Such investments usually take the form of stocks and shares but may include other assets, such as property, that are capable of generating income and/or capital growth.

In managing their spending and investments charities need to strike a balance between the needs of future and current beneficiaries. They also need to take account of spending commitments that may stretch over a number of future years. To do this, charities will normally adopt an investment strategy designed to generate both income and capital growth. To maximise returns trustees may commit to investment strategies for several years.

Investments can experience large swings in value so trustees may, in a particular year, decide to realise and spend part of their charity’s capital or to invest part of its income.

By clicking the investment gains checkbox the charitable spending bar is adjusted to take account of capital growth as well as income. This shows the balance the charity is striking, between spending on current beneficiaries and retaining resources for future beneficiaries.

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Raising funds and other expenditure £445.51k
Charitable expenditure £1.34m

People

24 Employee(s)

12 Trustee(s)

48 Volunteer(s)

Employees with total benefits over £60,000

Number of employees
£60k to £70k 2
£100k to £110k 1

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
  • The Prevention Or Relief Of Poverty
  • Other Charitable Purposes
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Defined Groups
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 14 April 1994: Standard registration
  • 02 January 2015: Funds received from 1011900 CFS RESEARCH FOUNDATION
  • 10 May 2017: Funds received from 1082059 ASSOCIATION OF YOUNG PEOPLE WITH ME LIMITED
  • 16 May 2018: Funds received from 1090755 M.E. NORTH DEVON
  • 18 March 2021: Funds received from 1002764 COLCHESTER M E S H GROUP
  • 05 April 2022: Funds received from 1142583 THE M.E. TRUST
Organisation type:
Charitable company
Other names:
  • AFME (Working name)
  • ACTION FOR M E (Previous name)
Company number:
02906840 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

12 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Roger Siddle Chair 15 October 2019
None on record
Wendy Lippmann Trustee 05 December 2024
None on record
Rosalyn Elizabeth Boyle Trustee 25 June 2024
None on record
Jeffrey Banks Trustee 15 February 2024
None on record
Eleanor Jessie Bulmer Trustee 29 September 2023
None on record
Dr Nirmala Santiapillai Trustee 20 September 2022
None on record
Julianne Devine Trustee 04 February 2022
None on record
Philip Courtney Trustee 04 February 2022
None on record
Shaun Vernon De Boo Trustee 11 February 2021
SHENFIELD PARISH HALL
Received: On time
Jonathan Manuel Trustee 11 February 2021
None on record
David Bernard Leigh Trustee 13 November 2020
None on record
Susan Hardy Trustee 18 November 2016
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £949.53k £1.19m £2.50m £1.12m £1.73m
Total expenditure £985.98k £832.59k £1.33m £1.79m £1.79m
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants £63.70k £21.12k £40.76k £21.50k £32.53k
Income - Donations and legacies £828.68k £999.11k £2.29m £813.07k £1.20m
Income - Other trading activities £34.78k £111.32k £18.46k £17.23k £335.84k
Income - Charitable activities £84.81k £81.40k £81.94k £139.97k £176.14k
Income - Endowments £0 £0 £0 £0 £0
Income - Investment £1.27k £301 £1.06k £8.56k £23.85k
Income - Other £0 £0 £107.88k £144.60k £0
Income - Legacies £131.00k £127.92k £1.31m £66.49k £271.43k
Expenditure - Charitable activities £844.99k £716.79k £1.08m £1.51m £1.34m
Expenditure - Raising funds £140.99k £115.81k £243.25k £281.25k £445.51k
Expenditure - Governance £35.30k £30.65k £36.26k £41.74k £42.16k
Expenditure - Grants institution £17.55k £15.66k £0 £38.67k £0
Expenditure - Investment management £0 £0 £0 £0 £0
Expenditure - Other £0 £0 £0 £0 £0

Assets and liabilities

Definitions for assets and liabilities
Own use assets

These are assets, other than investments, which are held for more than 12 months and used to run and administer the charity such as buildings, offices, exhibits and fixtures and fittings.

Long term Investments

Investments are assets held by the charity with the sole aim of generating income which will be used for their charitable purposes such as deposit accounts, shares, rental property and unit trusts.
Investment assets are re-valued every year and included in the balance sheet at their current market value.
Long term investments are held for more than 12 months.

Other assets

These are assets held generally for less than 12 months such as cash and bank balances, debtors, investments to be sold within the coming year and trading stock.

Defined benefit pension scheme asset or liability

This is a surplus or deficit in any defined benefit pension scheme operated and represents a potential long-term asset or liability.

Total liabilities

These are all the amounts owed by the charity at the balance sheet date to third parties such as bills due but not yet paid, bank overdrafts and loans and mortgages.

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Asset / Liability 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Own use assets £27.18k £27.68k £27.42k £19.41k £10.18k
Long-term investments £0 £50.00k £47.75k £44.32k £44.68k
Other assets £551.85k £882.09k £2.10m £1.43m £1.37m
Defined benefit pension scheme asset or liability £0 £0 £0 £0 £0
Total liabilities £53.04k £74.25k £119.30k £108.81k £93.49k

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 05 November 2024 On Time
Accounts and TAR 31 March 2024 05 November 2024 On Time Download Open in new window
Annual return 31 March 2023 17 November 2023 On Time
Accounts and TAR 31 March 2023 17 November 2023 On Time Download Open in new window
Annual return 31 March 2022 07 October 2022 On Time
Accounts and TAR 31 March 2022 07 October 2022 On Time Download Open in new window
Annual return 31 March 2021 06 October 2021 On Time
Accounts and TAR 31 March 2021 06 October 2021 On Time Download Open in new window
Annual return 31 March 2020 21 October 2020 On Time
Accounts and TAR 31 March 2020 21 October 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 10 MARCH 1994 AS AMENDED BY SPECIAL RESOLUTIONS DATED 24 OCTOBER 2008 AND 22 OCTOBER 2009 AS AMENDED BY SPECIAL RESOLUTION(S) DATED 08 FEB 2018

Charitable objects

THE RELIEF OF PERSONS SUFFERING FROM THE DISEASE MYALGIC ENCEPHALOMYELITIS (M.E. WHICH EXPRESSION WHERE USED IN THE ARTICLES SHALL INCLUDE CHRONIC FATIGUE SYNDROMES AND OTHER ASSOCIATED SYNDROMES) AND TO PROVIDE INFORMATION, ADVICE AND SUPPORT AND TO PROMOTE PUBLIC EDUCATION AND RESEARCH INTO THE DISEASE (PROVIDED THAT THE USEFUL RESULTS OF ANY SUCH RESEARCH ARE FULLY DISSEMINATED TO THE GENERAL PUBLIC)

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
Unit 2.2 Streamline
436-441 Paintworks
Arnos Vale
BRISTOL
BS4 3AS
Phone:
01179279551
Email:
kate.dobson@actionforme.org.uk
Website:

www.actionforme.org.uk Open in new window