WOLF HIRSCHHORN SYNDROME TRUST

Charity Number: 1038219
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The charity supports persons with Wolf Hirschhorn Syndrome and their families / carers. The charity produces regular newsletters, provides written information, a website, an advice line and organises meetings at local and national level. The charity provides grants for equipment. The charity promotes research and aims to increase awareness of this rare genetic condition.

Income and expenditure

Data for financial year ending 31 May 2024

Total income: £17,680
Total expenditure: £26,408

People

4 Trustee(s)

8 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Disability
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Other Finance
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Scotland

Governance

Registration history:
  • 31 May 1994: Standard registration
Organisation type:
Trust
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
STEPHEN WILLIAM D'ALLENGER BRADSHAW Chair 27 May 2013
None on record
Gareth Griffiths Trustee 20 May 2024
None on record
Sarah Fleming Trustee 20 May 2024
None on record
Katharina Sophie Vogt Trustee 01 October 2023
None on record

Financial history

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Financial period end date

Income / Expenditure 31/05/2020 31/05/2021 31/05/2022 31/05/2023 31/05/2024
Total gross income £12.08k £6.51k £11.69k £8.70k £17.68k
Total expenditure £4.13k £3.54k £17.51k £2.92k £26.41k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 May 2024 22 March 2025 On Time
Accounts and TAR 31 May 2024 Not Required
Annual return 31 May 2023 18 March 2024 On Time
Accounts and TAR 31 May 2023 Not Required
Annual return 31 May 2022 01 November 2022 On Time
Accounts and TAR 31 May 2022 Not Required
Annual return 31 May 2021 04 July 2021 On Time
Accounts and TAR 31 May 2021 Not Required
Annual return 31 May 2020 16 August 2020 On Time
Accounts and TAR 31 May 2020 Not Required
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

TRUST DEED DATED 10/05/1994 AS AMENDED BY DEED DATED 16/09/2012

Charitable objects

THE RELIEF OF PERSONS WITH WOLF HIRSCHHORN SYNDROME 4P- (HEREINAFTER "WOLF SYNDROME") BY PROMOTING AND ASSISTING IN THE PROVISION OF THEIR CARE AND TREATMENT; (FOR FURTHER DETAILS SEE CLAUSE 4 OF TRUST DEED)

Area of benefit

The area the charity can operate in, as set out in its governing document.

UNITED KINGDOM

Contact information

Address:
62 Crescent Road
BURGESS HILL
RH15 8EG
Phone:
07917334407
Email:
chair@whs4pminus.co.uk
Website:

www.whs4pminus.co.uk Open in new window