CdLS Foundation UK & Ireland

Charity Number: 1054033
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £61,959
Total expenditure: £63,874

People

8 Trustee(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 25 March 1996: Standard registration
Organisation type:
Other
Other names:
  • CD L S FOUNDATION (Working name)
  • CORNELIA DE LANGE SYNDROME FOUNDATION UK (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

8 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Kim Wildborne Trustee 16 September 2024
None on record
Bjorn Harris Trustee 27 April 2022
JOHN BRISTOW AND THOMAS MASON TRUST
Received: On time
Jack Young Trustee 27 June 2019
None on record
CHARLES BLOCKLEY Trustee 29 October 2017
None on record
Sara Peaford-Smith Trustee 01 May 2016
None on record
Ryan Saunders Trustee 04 May 2013
None on record
DAVID AXTELL Trustee 14 October 2012
None on record
FAYE KETT Trustee 14 October 2012
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £53.24k £58.97k £45.24k £51.74k £61.96k
Total expenditure £63.19k £33.81k £33.22k £54.23k £63.87k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 19 September 2024 On Time
Accounts and TAR 31 December 2023 19 September 2024 On Time Download Open in new window
Annual return 31 December 2022 17 May 2023 On Time
Accounts and TAR 31 December 2022 17 May 2023 On Time Download Open in new window
Annual return 31 December 2021 20 May 2022 On Time
Accounts and TAR 31 December 2021 20 May 2022 On Time Download Open in new window
Annual return 31 December 2020 30 June 2021 On Time
Accounts and TAR 31 December 2020 30 June 2021 On Time Download Open in new window
Annual return 31 December 2019 12 October 2020 On Time
Accounts and TAR 31 December 2019 08 September 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 20 NOVEMBER 1994 as amended on 27 Apr 2019 as amended on 26 Aug 2020

Charitable objects

TO ENSURE EARLY AND ACCURATE DIAGNOSIS OF CDLS THROUGHOUT THE WORLD TO PROMOTE RESEARCH AND TO ENABLE FAMILIES FRIENDS AND PROFESSIONALS TO MAKE AN INFORMED DECISION AND PLAN FOR THE AFFECTED PERSON'S PRESENT AND FUTURE

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
C D L S Foundation
PO Box 8368
RIPLEY
DE5 4DA
Phone:
01375376439
Email:
info@cdls.org.uk
Website:

www.cdls.org.uk Open in new window