THE PSEUDOXANTHOMA ELASTICUM SUPPORT GROUP (PIXIE)

Charity Number: 1055465
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Help, encourage and assist those with PXE and their family members. Heighten the awareness of PXE amongst the medical community, support services and the general public. Link members with each other for mutual support and exchange of ideas. Provide information on the various aspects of PXE. Hold meetings to which all members, their families and friends are invited.

Income and expenditure

Data for financial year ending 05 April 2024

Total income: £0
Total expenditure: £0

People

2 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

No information available

Trustee payments

No information available

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
Where the charity operates:
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 20 May 1996: Standard registration
  • 09 October 2014: Removed (Does not operate)
  • 23 November 2014: Re-registered
  • 09 October 2015: Removed (Does not operate)
  • 30 November 2015: Re-registered
Organisation type:
Trust
Other names:
  • PSEUDOXANTHOMA ELASTICUM SUPPORT GROUP (PIXIE) (Working name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
No policies declared
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

2 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
MR CHRIS BROWNLEE BSC CENG MIEE Chair
None on record
STEVE DENNIS Trustee 20 July 2011
None on record

Financial history

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Financial period end date

Income / Expenditure 05/04/2020 05/04/2021 05/04/2022 05/04/2023 05/04/2024
Total gross income £4.78k £250 £250 £0 £0
Total expenditure £3.95k £743 £2.73k £99 £0
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 05 April 2024 04 January 2025 On Time
Accounts and TAR 05 April 2024 Not Required
Annual return 05 April 2023 19 December 2023 On Time
Accounts and TAR 05 April 2023 Not Required
Annual return 05 April 2022 05 September 2022 On Time
Accounts and TAR 05 April 2022 Not Required
Annual return 05 April 2021 02 February 2022 On Time
Accounts and TAR 05 April 2021 Not Required
Annual return 05 April 2020 21 September 2020 On Time
Accounts and TAR 05 April 2020 Not Required
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Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

TRUST DEED DATED 6 MAY 1996

Charitable objects

1) THE RELIEF OF PERSONS SUFFERING FROM PSEUDOXANTHOMA ELASTICUM. 2) TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OF RELIEF OF THE CONDITION AND THAT USEFUL RESULTS OF SUCH RESEARCH SHALL BE PUBLISHED.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
15 MEAD CLOSE
MARLOW
SL7 1HR
Phone:
01628476687
Email:
elspeth@pxe.org.uk
Website:

www.pxe.org.uk Open in new window