THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE

Charity number: 266071
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The Paget's Association provides information and support to people whose lives are affected by all aspects of Paget's Disease of Bone and to educate health professionals. It works to raise the profile of the condition, and to raise awareness, both amongst members of the public and health professionals. It also supports and funds research into all aspects of Paget's Disease of Bone.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £108,259
Total expenditure: £228,400

People

11 Trustee(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Elderly/old People
  • People With Disabilities
  • Other Defined Groups
  • The General Public/mankind
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 14 August 1973: Standard registration
Organisation type:
Other
Other names:
  • NARPD (Working name)
  • PAGETS ASSOCIATION (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Conflicting interests
  • Internal risk management policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

11 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Professor Stuart Hamilton Ralston Chair 20 September 2018
PREGNANCY ASSOCIATED OSTEOPOROSIS UK
Recently registered
Mohamed El Erian Trustee 27 October 2023
None on record
Alan Martin Trustee 26 October 2023
None on record
Eve Marcia Berry Trustee 30 September 2022
None on record
Dr Faizanur Rahman Trustee 30 September 2022
None on record
Professor Jeremy Mark Wilkinson Trustee 08 October 2021
None on record
Kely Burman Trustee 16 October 2020
None on record
Amanda Sherwood Trustee 16 October 2020
None on record
Dr Sheelagh Farrow Trustee 04 October 2019
None on record
Dr R Layfield Trustee 29 September 2016
None on record
Professor Graham G Russell Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £543.18k £88.27k £205.19k £125.23k £108.26k
Total expenditure £188.30k £392.13k £257.30k £329.46k £228.40k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A
Income - Donations and legacies £491.73k N/A N/A N/A N/A
Income - Other trading activities £32.85k N/A N/A N/A N/A
Income - Charitable activities £0 N/A N/A N/A N/A
Income - Endowments £0 N/A N/A N/A N/A
Income - Investment £18.61k N/A N/A N/A N/A
Income - Other £0 N/A N/A N/A N/A
Income - Legacies £398.81k N/A N/A N/A N/A
Expenditure - Charitable activities £177.64k N/A N/A N/A N/A
Expenditure - Raising funds £10.66k N/A N/A N/A N/A
Expenditure - Governance £14.95k N/A N/A N/A N/A
Expenditure - Grants institution £14.08k N/A N/A N/A N/A
Expenditure - Investment management £0 N/A N/A N/A N/A
Expenditure - Other £0 N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 26 September 2024 On Time
Accounts and TAR 31 December 2023 26 September 2024 On Time Download Open in new window
Annual return 31 December 2022 12 October 2023 On Time
Accounts and TAR 31 December 2022 12 October 2023 On Time Download Open in new window
Annual return 31 December 2021 21 June 2022 On Time
Accounts and TAR 31 December 2021 21 June 2022 On Time Download Open in new window
Annual return 31 December 2020 27 September 2021 On Time
Accounts and TAR 31 December 2020 27 September 2021 On Time Download Open in new window
Annual return 31 December 2019 18 August 2020 On Time
Accounts and TAR 31 December 2019 18 August 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

RULES ADOPTED 5 JULY 1973 AS AMENDED 21 MARCH 1974 AND 10 AUGUST 1989 AS AMENDED ON 10 SEP 2004 AS AMENDED ON 17 SEP 2010 AS AMENDED ON 07 SEP 2012 AS AMENDED ON 04 OCT 2019 AS AMENDED ON 16 OCT 2020 AS AMENDED ON 08 OCT 2021 as amended on 19 Apr 2023

Charitable objects

TO PRESERVE AND PROTECT THE HEALTH OF PERSONS SUFFERING FROM PAGET'S DISEASE OF BONE AND THEIR FAMILIES BY A) PROVIDING INFORMATION AND SUPPORT, B) RAISING AWARENESS ABOUT PAGET'S DISEASE OF BONE BOTH WITHIN THE MEDICAL AND ALLIED HEALTH PROFESSIONS, AND AMONGST THE GENERAL PUBLIC, C) SUPPORTING AND FUNDING RESEARCH PROJECTS IN THE FIELD OF PAGET'S DISEASE OF BONE OR ITS TREATMENT.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
Paget's Association (NARPD)
Jactin House
24 Hood St
Ancoats
MANCHESTER
M4 6WX
Phone:
01617994646
Email:
diana.wilkinson@paget.org.uk
Website:

www.paget.org.uk Open in new window