WILLIAMS SYNDROME FOUNDATION LIMITED

Charity number: 281014
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The Williams Syndrome Foundation was formed in 1980 and is run for parents by parents with the dual aim of providing help and support to families and carers of WS people of all ages and of carrying out medical research. Annual national and local meetings are organised and research is funded by the Foundation.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £219,883
Total expenditure: £156,410

People

9 Trustee(s)

35 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 11 November 1980: Standard registration
  • 20 February 2017: Funds received from 1157604 FRIENDS OF NORTHANTS DISABILITY CRICKET
Organisation type:
Charitable company
Other names:
  • THE INFANTILE HYPERCALCAEMIA FOUNDATION LIMITED (Previous name)
Company number:
01523794 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

9 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Paul Richard Lawrie Chair 28 January 2020
None on record
David Roger Robinson Trustee 01 February 2024
None on record
Dr Michael John Wolfman Trustee 01 February 2023
None on record
BETHAN VASEY Trustee 08 June 2022
None on record
Stephanie Jayne Spencer Trustee 01 February 2022
THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF RADCLIFFE ON TRENT
Received: On time
John Roy Folliss Trustee 16 November 2020
None on record
Meriel Jane Burrows Trustee 08 October 2012
GLOBAL MUSIC EXCHANGE
Received: On time
LOUISE FISK Trustee 08 October 2012
None on record
PATRICK TAYLOR Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £191.57k £95.51k £158.51k £188.13k £219.88k
Total expenditure £153.66k £88.24k £125.78k £294.86k £156.41k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 07 October 2024 On Time
Accounts and TAR 31 March 2024 07 October 2024 On Time Download Open in new window
Annual return 31 March 2023 22 November 2023 On Time
Accounts and TAR 31 March 2023 22 November 2023 On Time Download Open in new window
Annual return 31 March 2022 25 September 2022 On Time
Accounts and TAR 31 March 2022 25 September 2022 On Time Download Open in new window
Annual return 31 March 2021 03 October 2021 On Time
Accounts and TAR 31 March 2021 03 October 2021 On Time Download Open in new window
Annual return 31 March 2020 06 September 2020 On Time
Accounts and TAR 31 March 2020 06 September 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 15TH SEPTEMBER 1980 AS AMENDED ON 14 AUGUST 1995 AS AMENDED BY SPECIAL RESOLUTION(S) DATED 13 OCT 2015 as amended on 27 Jul 2022 as amended on 16 Dec 2022

Charitable objects

THE ADVANCEMENT OF PUBLIC EDUCATION AS TO AND RESEARCH INTO THE CAUSE, DIAGNOSIS, RECOGNITION, EFFECTS AND TREATMENT OF WILLIAMS SYNDROME AND OTHER RELATED CONDITIONS AND FOR THE TREATMENT, CARE, EDUCATION AND ASSISTANCE OF THOSE AFFECTED BY SUCH CONDITIONS WITHIN THE UNITED KINGDOM AND ELSEWHERE.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NATIONAL

Contact information

Address:
Box 103
5 Charter House
Lord Montgomery Way
PORTSMOUTH
PO1 2SN
Phone:
02085671374
Email:
enquiries@williams-syndrome.org.uk
Website:

www.williams-syndrome.org.uk Open in new window